职业表现辅导家长以促进发展障碍的幼儿的社区参与和生活质量:香港的可行性评估。

Occupational Performance Coaching with Parents to Promote Community Participation and Quality of Life of Young Children with Developmental Disabilities: A Feasibility Evaluation in Hong Kong.

机构信息

Department of Rehabilitation Sciences, The Hong Kong Polytechnic University, Hung Hom, Kowloon, Hong Kong (SAR), China.

Rehabilitation Teaching and Research Unit, University of Otago, Wellington South 6242, New Zealand.

出版信息

Int J Environ Res Public Health. 2020 Oct 30;17(21):7993. doi: 10.3390/ijerph17217993.

Abstract

Participation in community activities contributes to child development and health-related quality of life (HRQOL), but restricted participation has been reported in children with disabilities. Occupational performance coaching (OPC) is an intervention that targets participatory goals in child performance through coaching parents, with evidence of effectiveness for pediatric populations. Little is known about the feasibility of OPC in Hong Kong, or its effect on children's community participation and HRQOL. A mixed-methods case study design was applied to explore Hong Kong parents' experience of OPC in relation to goal achievement, community participation, and HRQOL change in children. Four parents of young children with developmental disabilities (aged five to six years) received OPC for three to eight sessions within one to three months. Quantitative pre- and post-intervention data were analyzed descriptively. Semi-structured interviews with parents were conducted at post-intervention, and analyzed using content analysis. Results showed a trend of improvement in goal performance, child involvement in community activities, and specific aspects of HRQOL among most participants. Parents perceived undertaking OPC positively, described gaining insights and skills, and felt supported. The findings suggest that OPC warrants further investigation for use in Hong Kong, to promote children's community participation and quality of life.

摘要

参与社区活动有助于儿童的发展和与健康相关的生活质量(HRQOL),但据报道,残疾儿童的参与受到限制。职业表现辅导(OPC)是一种通过辅导家长来针对儿童表现中的参与目标的干预措施,对儿科人群有一定的效果证据。对于 OPC 在香港的可行性,或其对儿童社区参与和 HRQOL 的影响,知之甚少。本研究采用混合方法案例研究设计,旨在探讨香港父母在实现目标、儿童社区参与和 HRQOL 变化方面的 OPC 体验。四位发育障碍幼儿(五岁至六岁)的家长在一至三个月内接受了三至八次 OPC。对干预前后的定量数据进行了描述性分析。对家长进行了干预后的半结构化访谈,并使用内容分析法进行了分析。结果显示,大多数参与者的目标表现、儿童参与社区活动以及特定方面的 HRQOL 都有改善的趋势。家长对接受 OPC 持积极态度,描述了他们获得的见解和技能,并感到得到了支持。研究结果表明,OPC 值得在香港进一步研究,以促进儿童的社区参与和生活质量。

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