Folch Annabel, Martínez-Leal Rafael, Vicens Paloma, Irazábal Marcia, Muñoz Silvia, Salvador-Carulla Luis, Rovira Lluís, Orejuela Carmen, Cortés Maria José
Intellectual Disability and Developmental Disorders Research Unit (UNIVIDD) - Fundació Villablanca, IISPV, Universitat Rovira i Virgili, Reus, Spain.
Department of Psychology, Universitat Rovira i Virgili, Tarragona, Spain.
J Appl Res Intellect Disabil. 2019 Jan;32(1):15-22. doi: 10.1111/jar.12497. Epub 2018 Jul 15.
People with intellectual developmental disorders have significant health disparities and a lack of proper attention to their health needs. They have been underrepresented in scientific research, and very few studies have been carried out using a representative randomized sample. The aim of this study was to describe the methods used in the POMONA-ESP project to recruit a representative and randomized sample of participants with intellectual developmental disorders.
The POMONA-ESP project is an observational cross-sectional study. It aims to explore the health status of people with intellectual developmental disorders across Spain and the use they make of health services.
The results of the POMONA-ESP project may have a major impact on people with intellectual developmental disorders and society in general. It is the first study to obtain geographically representative epidemiological data from a large sample, information that is fundamental to improving care and healthcare planning for people with intellectual developmental disorders.