Pang Patrick Cheong-Iao, Temple-Smith Meredith, Bellhouse Clare, Trieu Van-Hau, Kiropoulos Litza, Williams Helen, Coomarasamy Arri, Brewin Jane, Bowles Amanda, Bilardi Jade
School of Computing and Information Systems, The University of Melbourne, Australia.
Department of General Practice, The University of Melbourne, Australia.
Stud Health Technol Inform. 2018;252:118-125.
One in four pregnancies ends in miscarriage, a distressing event which can cause significant psychosocial impacts for many women, and yet often remains unseen and unspoken. Many would-be mothers turn to the internet for information and emotional support, and to share their experiences. In this paper, we present the results from 12 semi-structured interviews with women, investigating how and what online information they searched for at the time of miscarriage. We found that women are passive information seekers, searching for causes and preventive strategies to inform future pregnancies. Women want information presented in an easy to understand manner that is not overly clinical, and informed by credible sources. Women also seek psychological support and emotional relief through reading about others' experiences and sharing their stories online. The findings from this study provide a unique insight into the support and information needs of women, and will be used to guide the content, design and functionality of web-based technologies for women experiencing miscarriage.
四分之一的怀孕以流产告终，这是一件令人痛苦的事情，会给许多女性带来重大的心理社会影响，但往往不为人所见、不为人所谈。许多准妈妈会在网上寻求信息和情感支持，并分享她们的经历。在本文中，我们展示了对女性进行的12次半结构化访谈的结果，调查她们在流产时如何以及搜索了哪些在线信息。我们发现，女性是被动的信息寻求者，她们搜索原因和预防策略，以便为未来的怀孕提供参考。女性希望信息以易于理解的方式呈现，不过于临床化，且来源可靠。女性还通过阅读他人的经历并在网上分享自己的故事来寻求心理支持和情感慰藉。这项研究的结果为了解女性的支持和信息需求提供了独特的视角，并将用于指导为流产女性设计的网络技术的内容、设计和功能。
