Paulsen Bård, Johnsen Roar, Hadders Hans
Health service research SINTEF Technology and Society Trondheim Norway.
Department of Public Health and Nursing Norwegian University of Science and Technology (NTNU) Trondheim Norway.
Nurs Open. 2018 Apr 19;5(3):431-441. doi: 10.1002/nop2.155. eCollection 2018 Jul.
The aim of this study was to explore any differences between nurses working in nursing home and home-based care in their experiences regarding relatives' ability to accept the imminence of death and relatives' ability to reach agreement when deciding on behalf of patients unable to consent.
An electronic questionnaire-based cross-sectional study.
An electronically distributed survey to 884 nurses in long-term care in Norway in May 2014. A total of 399 nurses responded (45%), of which 197 worked in nursing homes and 202 in home-based care.
Nurses in home-based care, more often than their colleagues in nursing homes, experienced that relatives had difficulties in accepting that patients were dying. Nurses who often felt insecure about whether life extension was in consistency with patients' wishes and nurses who talked most about life-prolonging medical treatment in communication with relatives more often experienced that relatives being reluctant to accept a poor prognosis and disagreements between relatives in their role as proxy decision makers for the patient.
本研究旨在探讨在养老院工作的护士与居家护理护士在亲属接受患者临近死亡的能力以及在代表无法做出同意决定的患者进行决策时亲属达成一致的能力方面的经验差异。
基于电子问卷的横断面研究。
2014年5月,对挪威长期护理机构中的884名护士进行电子问卷调查。共有399名护士回复(45%),其中197名在养老院工作,202名从事居家护理。
与养老院的同事相比,居家护理护士更常体会到亲属难以接受患者濒临死亡。那些经常对延长生命是否符合患者意愿感到不安的护士,以及在与亲属沟通中最常谈论延长生命的医疗治疗的护士,更常体会到亲属不愿接受预后不良以及亲属作为患者代理决策者时存在分歧。