Hall Charlie C, Lugton Jean, Spiller Juliet Anne, Carduff Emma
St Columba's Hospice, Edinburgh, UK.
Marie Curie Hospice, Edinburgh, UK.
BMJ Support Palliat Care. 2019 Mar;9(1):1-11. doi: 10.1136/bmjspcare-2018-001526. Epub 2018 Aug 14.
Do Not Attempt Cardio-Pulmonary Resuscitation (DNACPR) discussions with patients and their caregivers have been subjected to intense ethical and legal debate in recent years. Legal cases and national guidelines have tried to clarify the best approach to DNACPR discussions; however, there is little evidence of how best to approach them from the patient, family or caregiver perspective. This paper describes published accounts of patient, family and caregiver experiences of discussions about advance cardiopulmonary resuscitation (CPR) decision making.
An integrative review of the UK literature between 2000 and 2016 including qualitative and quantitative studies was conducted. Worldwide, 773 abstracts were identified, and 20 papers from the UK were included in the final analysis.
Patient, family and caregivers prefer discussions to be initiated by someone trusted, and wishes for family involvement vary depending on the context. Timing of discussions should be individualised, though discussions earlier in the illness are often preferable. Discussions held in the acute setting are suboptimal. CPR decisions should be part of a wider discussion about future care and adequate communication skills training is important.
The findings of this review are at odds with the current statutory framework and potentially challenging for medical professionals who are working in a stretched health service, with pressure to discuss DNACPR decisions at the earliest opportunity. With increasing focus on person-centred care and realistic medicine, patient narratives must be considered by doctors and policy makers alike, to minimise harm.
近年来,与患者及其护理人员进行的“不要尝试心肺复苏”(DNACPR)讨论一直受到激烈的伦理和法律辩论。法律案例和国家指南试图阐明进行DNACPR讨论的最佳方法;然而,从患者、家属或护理人员的角度来看,几乎没有证据表明如何以最佳方式进行此类讨论。本文描述了已发表的关于患者、家属和护理人员在预先心肺复苏(CPR)决策讨论方面的经历。
对2000年至2016年间英国的文献进行了综合回顾,包括定性和定量研究。在全球范围内,共识别出773篇摘要,最终分析纳入了来自英国的20篇论文。
患者、家属和护理人员希望由受信任的人发起讨论,并且对家属参与的意愿因情况而异。讨论的时机应因人而异,不过在疾病早期进行讨论通常更可取。在急性环境中进行的讨论效果欠佳。CPR决策应作为关于未来护理的更广泛讨论的一部分,并且充分的沟通技能培训很重要。
本综述的结果与当前的法定框架不一致,对于在紧张的医疗服务环境中工作、面临尽早讨论DNACPR决策压力的医疗专业人员来说可能具有挑战性。随着对以患者为中心的护理和务实医学的日益关注,医生和政策制定者都必须考虑患者的叙述,以尽量减少伤害。