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创伤性脑损伤后服役人员和退伍军人照料者的负担

Burden among caregivers of service members and veterans following traumatic brain injury.

作者信息

Brickell Tracey A, French Louis M, Lippa Sara M, Lange Rael T

机构信息

a Research Division , Defense and Veterans Brain Injury Center, Walter Reed National Military Medical Center , Bethesda , Maryland , USA.

b National Intrepid Center of Excellence, Walter Reed National Military Medical Center , Bethesda , Maryland , USA.

出版信息

Brain Inj. 2018;32(12):1541-1548. doi: 10.1080/02699052.2018.1503328. Epub 2018 Aug 27.

DOI:10.1080/02699052.2018.1503328
PMID:30148407
Abstract

OBJECTIVES

To determine the (a) health status and caregiving appraisal and (b) influence of perceived burden on health and appraisal in a sample of caregivers helping service member/veterans (SMVs) following a traumatic brain injury (TBI).

METHODS

Participants were caregivers (N = 283, female = 96.1%, 86.2% = spouse/partner) of SMVs who sustained a mild-severe or penetrating TBI. Participants completed the Caregiver Appraisal Scale (CAS) and the SF-36v2 Health Survey (SF-36v2). Participants were divided into three burden groups: high, neutral, and low.

RESULTS

Almost half the sample (48.8%) reported negative feelings on the CAS Perceived Burden scale. A substantial proportion had lower scores than a normative sample on four SF-36v2 physical health scales (35.1-64.5%) and four mental health scales (70.7-79.8%). A significant main effect was found across caregiver burden groups on three CAS scales (p = 0.010 to p < 0.001), two SF-36v2 component scores (all ps < 0.001), and eight SF-36v2 scales (p = 0.001 to p < 0.001). Caregivers with high perceived burden reported significantly worse scores, except CAS Caregiving Ideology. All CAS and SF-36v2 scales were significant predictors of CAS Perceived Burden scores (all ps< 0.001), with the SF-36v2 Social Functioning scale accounting for the most variance (32.6%).

CONCLUSIONS

Health care and social services are needed for caregivers who help SMVs to foster resilience, wellness, and growth.

摘要

目的

在帮助遭受创伤性脑损伤(TBI)的军人/退伍军人(SMV)的护理人员样本中,确定(a)健康状况和护理评估,以及(b)感知负担对健康和评估的影响。

方法

参与者是遭受轻度 - 重度或穿透性TBI的SMV的护理人员(N = 283,女性 = 96.1%,86.2% 为配偶/伴侣)。参与者完成了护理人员评估量表(CAS)和SF - 36v2健康调查(SF - 36v2)。参与者被分为三个负担组:高、中、低。

结果

几乎一半的样本(48.8%)在CAS感知负担量表上报告有负面情绪。相当一部分人在四个SF - 36v2身体健康量表(35.1 - 64.5%)和四个心理健康量表(70.7 - 79.8%)上的得分低于正常样本。在三个CAS量表(p = 0.010至p < 0.001)、两个SF - 36v2分量表(所有p值 < 0.001)和八个SF - 36v2量表(p = 0.001至p < 0.001)上,发现护理人员负担组之间存在显著的主效应。除了CAS护理观念外,感知负担高的护理人员报告的得分明显更差。所有CAS和SF - 36v2量表都是CAS感知负担得分的显著预测因素(所有p值 < 0.001),其中SF - 36v2社会功能量表解释的方差最大(32.6%)。

结论

需要为帮助SMV的护理人员提供医疗保健和社会服务,以促进他们的恢复力、健康和成长。

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