Goymour Kirsty-Leah, Heaton Maria, Coombs Sandra, Kelk Norm, Estreich Kylie, Sarraf Sara, Trethewie Susan, Jaaniste Tiina
1 Department of Palliative Care, Sydney Children's Hospital, Randwick, New South Wales, Australia.
2 Child Life and Music Therapy Department, Sydney Children's Hospital, Randwick, New South Wales, Australia.
J Palliat Care. 2019 Jul;34(3):197-204. doi: 10.1177/0825859718796791. Epub 2018 Aug 31.
Caring for a child in hospital who is approaching death, in the terminal phase, requires a focus on caring for the physical, emotional, and spiritual needs of the child and family. Health professionals caring for these children and families may need to shift their focus from a treatment-focused approach aimed at cure or maintaining life to a comfort-focused approach. The Comfort Care Case (CCC) is a collection of resources designed for use in hospital to ease suffering and facilitate comfort within a pediatric end-of-life (EOL) context. The resources are intended to support the child, the family, and the health professionals involved in EOL care. This article describes the development, implementation, and education associated with the CCC in a tertiary pediatric hospital.
照顾一名处于濒死期、终末期的住院儿童，需要关注儿童及其家庭的身体、情感和精神需求。照顾这些儿童及其家庭的医护人员可能需要将关注点从旨在治愈或维持生命的以治疗为重点的方法，转变为以舒适为重点的方法。舒适护理案例（CCC）是一套资源集合，旨在用于医院，以减轻儿科临终关怀背景下的痛苦并促进舒适。这些资源旨在支持参与临终关怀护理的儿童、家庭和医护人员。本文介绍了一所三级儿科医院中与CCC相关的开发、实施和教育情况。
