Nagelhout Elizabeth S, Linder Lauri A, Austin Tara, Parsons Bridget Grahmann, Scott Brantley, Gardner Emmie, Spraker-Perlman Holly, Verma Anupam, Fluchel Mark N, Wu Yelena P
1 University of Utah, Salt Lake City, UT, USA.
2 Brigham Young University, Provo, UT, USA.
J Pediatr Oncol Nurs. 2018 Nov/Dec;35(6):399-405. doi: 10.1177/1043454218795091. Epub 2018 Aug 31.
Social media as an effective source of information and support among parents and other caregivers of children with cancer has not been explored. The purpose of this cross-sectional study was to describe caregivers' reasons for using social media, social media sites used, and predictors of social media usage. This study sample included 215 caregivers (96% parents) of children with cancer receiving cancer-related care at a tertiary children's hospital in the Intermountain West. Most of caregivers (74%) reported using social media in relation to their child's cancer and reported using social media to provide and receive support and information about their child's diagnosis or treatment. Our findings suggest that social media could be a delivery platform for future interventions seeking to meet the informational and emotional needs of caregivers of children with cancer. An awareness of how parents and caregivers of children receiving cancer-related treatment use social media can help nurses understand their ongoing informational and emotional needs. Nurses can also support parents and caregivers in selecting reputable sources of support that are accessible via social media.
社交媒体作为癌症患儿家长及其他照料者获取信息和支持的有效来源，尚未得到充分研究。本横断面研究旨在描述照料者使用社交媒体的原因、所使用的社交媒体平台以及社交媒体使用的预测因素。本研究样本包括215名在西部山间地区一家三级儿童医院接受癌症相关治疗的癌症患儿照料者（96%为家长）。大多数照料者（74%）报告称在孩子患癌期间使用社交媒体，并表示通过社交媒体提供和获取有关孩子诊断或治疗的支持与信息。我们的研究结果表明，社交媒体可以成为未来干预措施的传递平台，以满足癌症患儿照料者的信息和情感需求。了解接受癌症相关治疗的患儿家长及照料者如何使用社交媒体，有助于护士理解他们持续存在的信息和情感需求。护士还可以支持家长和照料者选择可通过社交媒体获取的可靠支持来源。
