Nossair Fadi, Thornburg Courtney D
Hemophilia and Thrombosis Treatment Center, Rady Children's Hospital San Diego, San Diego, USA.
Professor of Pediatrics, UC San Diego, 3020 Children's Way, MC 5035, San Diego, CA 92123, USA.
Ther Adv Hematol. 2018 Jul 2;9(8):239-249. doi: 10.1177/2040620718784830. eCollection 2018 Aug.
Medical decisions in hemophilia care are primarily related to the type of factor replacement and treatment regimen. With the growing number of treatment options for patients with hemophilia, decision making is more complex and requires careful consideration of benefits, risks, and patient goals. Shared decision making and decision-aid tools facilitate patient and healthcare provider communication. In this review, the overall role of shared decision making in medicine is outlined, with special emphasis on models for practical implementation. Examples of shared decision making in hemophilia are outlined, and application to new therapeutics is discussed through a case-based approach.
血友病治疗中的医疗决策主要与凝血因子替代类型和治疗方案有关。随着血友病患者治疗选择的不断增加,决策变得更加复杂,需要仔细考虑益处、风险和患者目标。共同决策和决策辅助工具有助于患者与医疗服务提供者之间的沟通。在本综述中,概述了共同决策在医学中的总体作用,特别强调了实际应用模型。概述了血友病共同决策的实例,并通过基于案例的方法讨论了其在新疗法中的应用。