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1
The role of patient and healthcare professionals in the era of new hemophilia treatments in developed and developing countries.
Ther Adv Hematol. 2018 Jul 2;9(8):239-249. doi: 10.1177/2040620718784830. eCollection 2018 Aug.
2
The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making.
Patient Prefer Adherence. 2022 Jun 9;16:1439-1447. doi: 10.2147/PPA.S355627. eCollection 2022.
3
Gene Therapy for Hemophilia A: A Mixed Methods Study of Patient Preferences and Shared Decision-Making.
Patient Prefer Adherence. 2023 Apr 19;17:1093-1105. doi: 10.2147/PPA.S406894. eCollection 2023.
7
How I approach: Previously untreated patients with severe congenital hemophilia A.
Pediatr Blood Cancer. 2018 Dec;65(12):e27466. doi: 10.1002/pbc.27466. Epub 2018 Sep 24.
8
Shared decision making: what do clinicians need to know and why should they bother?
Med J Aust. 2014 Jul 7;201(1):35-9. doi: 10.5694/mja14.00002.
9
Multiple perspectives on shared decision-making and interprofessional collaboration in mental healthcare.
J Interprof Care. 2013 May;27(3):223-30. doi: 10.3109/13561820.2013.767225. Epub 2013 Feb 19.
10
Sharing clinical decisions for multimorbidity case management using social network and open-source tools.
J Biomed Inform. 2013 Dec;46(6):977-84. doi: 10.1016/j.jbi.2013.06.007. Epub 2013 Jun 25.

引用本文的文献

1
Evaluating Gene Therapy as a Potential Paradigm Shift in Treating Severe Hemophilia.
BioDrugs. 2023 Sep;37(5):595-606. doi: 10.1007/s40259-023-00615-4. Epub 2023 Jul 25.
2
Hemophilia Patient Experience in a Physical Therapy-Guided Health Education Intervention: A Mixed-Method Design.
Healthcare (Basel). 2021 Dec 14;9(12):1728. doi: 10.3390/healthcare9121728.
3
Patient-relevant health outcomes for hemophilia care: Development of an international standard outcomes set.
Res Pract Thromb Haemost. 2021 Mar 6;5(4):e12488. doi: 10.1002/rth2.12488. eCollection 2021 May.
5
Comparative analysis of oral health and treatment necessities in hemophilia individuals of Davangere population - A case control study.
J Family Med Prim Care. 2020 Sep 30;9(9):4774-4777. doi: 10.4103/jfmpc.jfmpc_413_20. eCollection 2020 Sep.
6
Patient Perspectives on Novel Treatments in Haemophilia: A Qualitative Study.
Patient. 2020 Apr;13(2):201-210. doi: 10.1007/s40271-019-00395-6.
8
How to discuss gene therapy for haemophilia? A patient and physician perspective.
Haemophilia. 2019 Jul;25(4):545-557. doi: 10.1111/hae.13769. Epub 2019 May 21.
9
UK vs US physician decision-making in the treatment of haemophilia.
Haemophilia. 2019 Jul;25(4):616-625. doi: 10.1111/hae.13766. Epub 2019 May 5.

本文引用的文献

1
Novel therapies and current clinical progress in hemophilia A.
Ther Adv Hematol. 2018 Feb;9(2):49-61. doi: 10.1177/2040620717746312. Epub 2017 Dec 28.
2
AAV5-Factor VIII Gene Transfer in Severe Hemophilia A.
N Engl J Med. 2017 Dec 28;377(26):2519-2530. doi: 10.1056/NEJMoa1708483. Epub 2017 Dec 9.
3
Hemophilia B Gene Therapy with a High-Specific-Activity Factor IX Variant.
N Engl J Med. 2017 Dec 7;377(23):2215-2227. doi: 10.1056/NEJMoa1708538.
5
Gene therapy for hemophilia.
Pediatr Blood Cancer. 2018 Feb;65(2). doi: 10.1002/pbc.26865. Epub 2017 Oct 27.
6
Treatment adherence in hemophilia.
Patient Prefer Adherence. 2017 Sep 27;11:1677-1686. doi: 10.2147/PPA.S139851. eCollection 2017.
7
Patient powered prophylaxis: A 12-month study of individualized prophylaxis in adults with severe haemophilia A.
Haemophilia. 2017 Nov;23(6):877-883. doi: 10.1111/hae.13319. Epub 2017 Aug 29.
8
Emicizumab Prophylaxis in Hemophilia A with Inhibitors.
N Engl J Med. 2017 Aug 31;377(9):809-818. doi: 10.1056/NEJMoa1703068. Epub 2017 Jul 10.
9
Haemophilia patients' unmet needs and their expectations of the new extended half-life factor concentrates.
Haemophilia. 2017 Jul;23(4):566-574. doi: 10.1111/hae.13221. Epub 2017 Mar 30.
10
Applying a deliberation model to the analysis of consultations in haemophilia: Implications for doctor-patient communication.
Patient Educ Couns. 2017 Apr;100(4):690-695. doi: 10.1016/j.pec.2016.11.021. Epub 2016 Nov 28.

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