Department of Neurology, Aarhus University Hospital, Aarhus, Denmark.
Department of Anaesthesiology and Intensive Care, Aarhus University Hospital, Aarhus, Denmark.
J Clin Nurs. 2019 Mar;28(5-6):792-800. doi: 10.1111/jocn.14664. Epub 2018 Sep 19.
To explore the experiences and needs of relatives being part of the endovascular therapy (EVT) pathway.
Ischaemic stroke is the third leading cause of death and the most common cause of acquired disability among adults in the Western world. The most recently approved treatment for major stroke is EVT. Removing the arterial occlusion has proven to be the best predictor of outcome. While patients are treated, relatives are left waiting. Facing the massive shock of their loved ones having a stroke may cause emotional turmoil and leave relatives with various needs. No previous studies have explored experiences and needs of relatives who are part of an EVT pathway.
A qualitative design using a phenomenological-hermeneutic approach.
Semi-structured interviews and participant observations were carried out. Data were collected from April 2016-January 2017. Data were analysed using Ricoeur's theory of interpretation, capturing meaning and ensuring comprehensive understanding.
Four themes emerged are as follows: (a) The first phase-shock, chaos and feeling paralysed; (b) the all-important information-sharing is pivotal; (c) professional loving care-being seen and heard by caring health professionals; and (d) adjusting to new roles. One essential finding that emerged across all themes was relatives' constant need for care, for support and for health professionals to "be there."
Relatives need support and care during the entire EVT pathway. They tend to be modest and ignore their own needs. Relatives who experience chaos, fear and worry need to be met by professionals with real presence.
These findings will be used as a foundation for development of local structures and policies that should provide knowledge and ensure a consistent and proactive approach to meet the needs of the relatives in a timely and efficient manner.
探索作为血管内治疗 (EVT) 路径一部分的亲属的经历和需求。
缺血性中风是西方世界成年人死亡的第三大原因，也是获得性残疾的最常见原因。最近批准的主要中风治疗方法是 EVT。已证明清除动脉闭塞是预测结果的最佳指标。当患者接受治疗时，亲属只能等待。面对亲人中风带来的巨大冲击，可能会引起情绪波动，使亲属产生各种需求。以前没有研究探讨过参与 EVT 途径的亲属的经历和需求。
采用现象学-解释学方法的定性设计。
进行了半结构化访谈和参与者观察。数据收集于 2016 年 4 月至 2017 年 1 月。使用 Ricoeur 的解释理论对数据进行分析，捕捉意义并确保全面理解。
出现了四个主题：(a) 第一阶段-震惊、混乱和瘫痪感；(b) 至关重要的信息共享至关重要；(c) 专业的关爱-由关爱卫生专业人员看到和听到；(d) 适应新角色。在所有主题中都出现的一个重要发现是亲属在整个 EVT 途径中都需要关怀和支持，以及卫生专业人员的“陪伴”。
亲属在整个 EVT 途径中都需要支持和关怀。他们往往很谦虚，忽略了自己的需求。经历混乱、恐惧和担忧的亲属需要由专业人员以真实的存在来满足。
这些发现将作为基础，为发展当地的结构和政策提供依据，这些结构和政策应提供知识，并确保以及时和有效的方式满足亲属的需求，采取一致和积极的方法。
