1 Severance Cardiovascular Hospital, Yonsei University Health System, Seoul, Korea.
2 College of Nursing, Ewha Womans University, Seoul, Korea.
Eur J Cardiovasc Nurs. 2019 Feb;18(2):140-148. doi: 10.1177/1474515118800099. Epub 2018 Sep 10.
With the recent advances in medicine, patients with congenital heart disease are surviving to adulthood. Adults with congenital heart disease must practice self-management to recognize the symptoms of complications and the appropriate response.
The purpose of this study was to develop a self-management efficacy promotion program for adults with congenital heart disease and to test the effects of the developed program on disease-related knowledge, self-management implementation and health-related quality of life.
A non-equivalent, control group, pre-post test design was used. The intervention group received the self-management efficacy promotion program for six weeks. The control group received only the usual care.
The study results showed that disease-related knowledge ( F=91.095, p<0.001) was significantly different between the two groups, as was the self-management performance ( F=11.846, p<0.001). However, health-related quality of life (generic core scale: F=0.023, p=0.881, cardiac module scale: F=0.174, p=0.678) was not significantly different between groups.
The self-management efficacy promotion program for adults with congenital heart disease had a significant effect on disease-related knowledge and self-management implementation, but did not affect health-related quality of life.
随着医学的最新进展，患有先天性心脏病的患者能够存活至成年。患有先天性心脏病的成年人必须进行自我管理，以识别并发症的症状和适当的应对措施。
本研究旨在为先天性心脏病成年人制定自我管理效能提升计划，并检验该计划对疾病相关知识、自我管理实施和健康相关生活质量的影响。
采用非等组、对照组、前后测设计。干预组接受为期六周的自我管理效能提升计划。对照组仅接受常规护理。
研究结果表明，两组间疾病相关知识（ F=91.095， p<0.001）和自我管理表现（ F=11.846， p<0.001）存在显著差异。然而，两组间健康相关生活质量（一般核心量表： F=0.023， p=0.881，心脏模块量表： F=0.174， p=0.678）无显著差异。
先天性心脏病成年人的自我管理效能提升计划对疾病相关知识和自我管理实施有显著影响，但对健康相关生活质量没有影响。
