成骨不全症患儿和青少年身体康复共识声明。
Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta.
机构信息
Unireha, University of Cologne, Center of Prevention and Rehabilitation, Cologne, Germany.
University of Cologne, Children's Hospital, Kerpenerstraße 62, 50931, Cologne, Germany.
出版信息
Orphanet J Rare Dis. 2018 Sep 10;13(1):158. doi: 10.1186/s13023-018-0905-4.
On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0-18 years with osteogenesis imperfecta.
在 2017 年 8 月举行的第 13 届国际成骨不全症会议上，一个专家小组被召集来制定一份关于成骨不全症儿童和青少年物理康复的国际共识文件。这些专家是根据他们在儿童成骨不全症方面的临床经验选择的，并通过向 26 个不同国家的专门中心和患者组织发送问卷来确定。最终的专家组包括来自 14 个国家的 16 名代表（12 名物理治疗师、2 名职业治疗师和 2 名医生）。在个人经验的整理和文献检索结果的基础上，参与的物理治疗师、职业治疗师和医生制定了 17 条关于 0-18 岁成骨不全症患者物理康复的专家声明。
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