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社区和患者伙伴关系研究网络(CPPRN):应用以患者为中心的结果研究促进行为健康公平。

The Community and Patient Partnered Research Network (CPPRN): Application of Patient-Centered Outcomes Research to Promote Behavioral Health Equity.

机构信息

UCLA Semel Institute for Neuroscience and Human Behavior, Los Angeles, CA.

LSU Health Sciences Center New Orleans School of Medicine, New Orleans, LA.

出版信息

Ethn Dis. 2018 Sep 6;28(Suppl 2):295-302. doi: 10.18865/ed.28.S2.295. eCollection 2018.

Abstract

OBJECTIVE

We describe the rationale, development, and progress on the Community and Patient Partnered Research Network (CPPRN). The CPPRN builds on more than a decade of partnered work and is designed to promote health equity by developing partnered research on behavioral health and social risk factors in Los Angeles and New Orleans.

SETTING

A community-academic partnership across Los Angeles County and New Orleans.

METHODS

Review of rationale, history, structure, activities and progress in applying community partnered participatory research (CPPR) to CPPRN.

FINDINGS

Patient and community stakeholders participated in all phases of development, including local and national activities. Key developments include partnered planning efforts, progress on aggregating a large, de-identified dataset across county agencies, and development of an information technology-supported screening approach for behavioral and social determinants in health care, social, and community-based settings.

CONCLUSION

The CPPRN represents a promising approach for research data networks, balancing the potential benefit of information technology and data analytic approaches while addressing potential risks and priorities of relevant stakeholders.

摘要

目的

我们描述了社区和患者伙伴关系研究网络(CPPRN)的基本原理、开发和进展。CPPRN 建立在十多年的合作基础上,旨在通过在洛杉矶和新奥尔良开展行为健康和社会风险因素的合作研究来促进健康公平。

地点

跨越洛杉矶县和新奥尔良的社区-学术伙伴关系。

方法

审查应用社区合作参与式研究(CPPR)于 CPPRN 的基本原理、历史、结构、活动和进展。

发现

患者和社区利益相关者参与了开发的所有阶段,包括当地和国家活动。主要发展包括合作规划工作、在县机构之间汇总大型、去识别数据集的进展,以及开发一种信息技术支持的筛选方法,用于医疗保健、社会和社区环境中的行为和社会决定因素。

结论

CPPRN 代表了研究数据网络的一种有前途的方法,在平衡信息技术和数据分析方法的潜在益处的同时,解决了相关利益相关者的潜在风险和优先事项。

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