Chu Hyeon Sik, Tak Young Ran, Kim Seung Hyun
College of Nursing, Hanyang University, Seoul, Korea.
Cell Therapy Center for Neurological Disorders, Hanyang University Hospital, Seoul, Korea.
J Korean Acad Nurs. 2018 Aug;48(4):454-464. doi: 10.4040/jkan.2018.48.4.454.
The purpose of this study was to identify factors influencing psychosocial well-being in family caregivers of patients with amyotrophic lateral sclerosis (ALS).
A descriptive correlational design was used. The transactional model of stress and coping was used to investigate the psychosocial well-being of 137 family caregivers of patients with ALS. Data were collected through self-reported questionnaires from January to November 2016. Data were analyzed using an independent t-test, one-way ANOVA, Pearson's correlation, and hierarchical multiple regression analysis with the SPSS WIN 21.0 program.
The regression model had an adjusted R² of .49, which indicated that meaning-focused coping, social support, ALS patient-family caregiver relationship (especially a spousal relationship), and tracheostomy were significant predictors of caregivers' psychosocial well-being.
Meaning-focused coping and social support significantly influenced caregivers' psychosocial well-being. Therefore, interventions to improve caregivers' psychosocial well-being must focus on increasing meaning-focused coping and social support resources.
本研究旨在确定影响肌萎缩侧索硬化症（ALS）患者家庭照顾者心理社会幸福感的因素。
采用描述性相关性设计。应激与应对的交互模型用于调查137名ALS患者家庭照顾者的心理社会幸福感。2016年1月至11月通过自填问卷收集数据。使用独立样本t检验、单因素方差分析、Pearson相关性分析以及SPSS WIN 21.0程序进行分层多元回归分析对数据进行分析。
回归模型的调整后R²为0.49，这表明意义聚焦应对、社会支持、ALS患者与家庭照顾者的关系（尤其是配偶关系）以及气管切开术是照顾者心理社会幸福感的显著预测因素。
意义聚焦应对和社会支持显著影响照顾者的心理社会幸福感。因此，改善照顾者心理社会幸福感的干预措施必须侧重于增加意义聚焦应对和社会支持资源。
