Kingod Natasja
Steno Diabetes Center Copenhagen, Denmark; University of Copenhagen, Denmark.
Health (London). 2020 Mar;24(2):152-168. doi: 10.1177/1363459318800140. Epub 2018 Sep 12.
Danish adults with type 1 diabetes value peer-to-peer interaction through the social media platform Facebook as a way to quickly exchange knowledge on essential everyday self-care for chronic illness. In this praxiographic study, following informants into online and offline social dimensions, I explore how they use Facebook to exchange self-care knowledge based on practical experiments and negotiations between bodies, technologies and daily lives. When in doubt about how to self-care on a daily basis, Danish adults with type 1 diabetes look to Facebook for inspiration and peer support. A synergistic process of online searching and sharing and offline tinkering with self-care generates person-centred knowledge about how to live with illness that is situated to individual needs and unique daily lives. Facebook can be viewed as an emergent space for biosociality through which knowledge about how to self-care become co-constructed by peers based on their pragmatic experiences of self-care on a daily and ongoing basis.
患有1型糖尿病的丹麦成年人重视通过社交媒体平台脸书进行的 peer-to-peer 互动，以此作为快速交流慢性病日常基本自我护理知识的一种方式。在这项实践志研究中，我跟踪受访者进入线上和线下社交层面，探讨他们如何基于身体、技术和日常生活之间的实际试验与协商，利用脸书来交流自我护理知识。当对如何进行日常自我护理存疑时，患有1型糖尿病的丹麦成年人会向脸书寻求灵感和同伴支持。线上搜索与分享以及线下自我护理实践的协同过程，产生了以个人为中心的、根据个人需求和独特日常生活而定的与疾病共处的知识。脸书可被视为一个生物社会性的新兴空间，通过这个空间，关于如何自我护理的知识由同伴们基于他们日常持续的自我护理实用经验共同构建而成。
