新西兰奥克兰马努考县支气管扩张症患儿母亲的医疗保健经历。
Health care experiences of mothers of children with bronchiectasis in Counties Manukau, Auckland, New Zealand.
作者信息
Jepsen Nicola, Charania Nadia A, Mooney Sarah
机构信息
Department of Physiotherapy, Auckland University of Technology, North Campus, 90 Akoranga Drive, Northcote, Auckland, 0627, New Zealand.
Department of Public Health, Auckland University of Technology, South Campus, 640 Great South Road, Manukau, Auckland, 2025, New Zealand.
出版信息
BMC Health Serv Res. 2018 Sep 19;18(1):722. doi: 10.1186/s12913-018-3532-9.
BACKGROUND
Bronchiectasis is a worsening public health problem in New Zealand. This study aimed to explore the health care experiences of mothers of children with bronchiectasis in the Counties Manukau District Health Board area of Auckland, New Zealand.
METHODS
Semi-structured interviews were undertaken with ten mothers of children with bronchiectasis. Data were analysed using thematic analysis.
RESULTS
Five themes emerged: 1) Searching for answers, describing mothers' search for a diagnosis; 2) (Dis)empowerment, describing mothers' acquisition of knowledge, leading to empowerment; 3) Health care and relationships, describing the impact of relationships on the mother's health care experiences; 4) A juggling act, describing the challenges of juggling health care with school, work and family; 5) Making it work, describing how mothers overcome barriers to access health care for their child.
CONCLUSIONS
The health provider-parent relationship was crucial for fostering positive health care experiences. Mothers' acquisition of knowledge facilitated empowerment within those relationships. Additionally, mothers' perceptions of the quality and benefit of health services motivated them to overcome barriers to accessing care. Study findings may help to improve health care experiences for parents of children with bronchiectasis if identified issues are addressed.
背景
支气管扩张症在新西兰是一个日益严重的公共卫生问题。本研究旨在探索新西兰奥克兰市曼努考县地区卫生局辖区内患有支气管扩张症儿童的母亲的医疗保健经历。
方法
对十位患有支气管扩张症儿童的母亲进行了半结构化访谈。采用主题分析法对数据进行分析。
结果
出现了五个主题：1）寻求答案，描述母亲们寻求诊断的过程；2）（失）权能，描述母亲们获取知识并由此获得权能的过程；3）医疗保健与人际关系，描述人际关系对母亲医疗保健经历的影响；4）兼顾多方，描述在兼顾孩子医疗保健与学校、工作和家庭方面所面临的挑战；5）使其可行，描述母亲们如何克服孩子获得医疗保健的障碍。
结论
医疗服务提供者与家长之间的关系对于促进积极的医疗保健经历至关重要。母亲们获取知识有助于在这些关系中增强权能。此外，母亲们对医疗服务质量和益处的认知促使她们克服获得医疗服务的障碍。如果所发现的问题得到解决，研究结果可能有助于改善患有支气管扩张症儿童家长的医疗保健经历。
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