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脆性 X 综合征和唐氏综合征患儿母亲的情绪表达和冲动性:与子女行为问题的关系。

Expressed emotion and impulsiveness in mothers of children with Fragile X Syndrome and Down Syndrome: The relation to behavioral problems in their offspring.

机构信息

Department of Clinical and Health Psychology, Universidad Autonoma de Barcelona, Carrer de Ca n'-Altayó, S/N, 08193, Cerdanyola del Vallès, Spain.

Department of Clinical and Health Psychology, Universidad Autonoma de Barcelona, Carrer de Ca n'-Altayó, S/N, 08193, Cerdanyola del Vallès, Spain.

出版信息

Res Dev Disabil. 2018 Dec;83:179-189. doi: 10.1016/j.ridd.2018.08.016. Epub 2018 Sep 18.

Abstract

BACKGROUND

Fragile X Syndrome (FXS) and Down Syndrome (DS) are common causes of Intellectual Disability (ID). Mothers of individuals with FXS sometimes have the premutation condition which makes them display neurocognitive signs, such as impulsiveness impairments, while mothers of DS individuals, as a group, do not have impairments. Although behavior problems in individuals with ID may be related to high Expressed Emotion (EE) in parents, parenting in families with ID members has been little explored.

AIM

To explore the relationship between a mother's EE and impulsiveness, in mothers of individuals with FXS and DS, with behavior problems in their offspring.

METHOD

A questionnaire was developed to collect data about impulsiveness and EE in mothers, along with information about behavior problems in ID individuals.

RESULTS

EE scores were associated with behavior problems in their offspring for both samples. Mothers with the premutation showed higher scores in EE than mothers of DS individuals. However, impulsiveness scores were not different between both parental groups, and were related to EE scores.

CONCLUSIONS

EE is a parental feature that is possible to modulate and seems to be related to behavior problems in ID individuals. More research should be carried on to create interventions to reduce this attitude in parents of ID individuals.

摘要

背景

脆性 X 综合征(FXS)和唐氏综合征(DS)是智力障碍(ID)的常见原因。FXS 个体的母亲有时具有前突变条件,这使她们表现出神经认知迹象,如冲动障碍,而 DS 个体的母亲作为一个群体则没有这种障碍。尽管 ID 个体的行为问题可能与父母的高表达情绪(EE)有关,但 ID 成员家庭中的育儿问题尚未得到充分探索。

目的

探讨 FXS 和 DS 个体的母亲的 EE 与冲动之间的关系,以及她们的子女的行为问题。

方法

开发了一份问卷,以收集关于母亲冲动和 EE 的数据,以及 ID 个体行为问题的信息。

结果

对于两个样本,EE 分数与子女的行为问题相关。具有前突变的母亲的 EE 分数高于 DS 个体的母亲。然而,冲动分数在两个父母群体之间没有差异,并且与 EE 分数相关。

结论

EE 是一种可调节的父母特征,似乎与 ID 个体的行为问题有关。应该进行更多的研究来创建干预措施,以减少 ID 个体父母的这种态度。

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