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养育唐氏综合征患儿:对养育方式、养育维度和父母压力的分析。

Parenting children with down syndrome: An analysis of parenting styles, parenting dimensions, and parental stress.

机构信息

Ouachita Baptist University, Arkadelphia, AR, 71998, USA.

University of Alabama, Tuscaloosa, AL, 35487, USA.

出版信息

Res Dev Disabil. 2017 Sep;68:9-19. doi: 10.1016/j.ridd.2017.06.010. Epub 2017 Jul 7.

Abstract

BACKGROUND

Effective parenting is vital for a child's development. Although much work has been conducted on parenting typically developing children, little work has examined parenting children with Down syndrome.

AIMS

The purpose of the current study was to compare the parenting styles and dimensions in mothers of children with DS and mothers of TD children.

METHODS AND PROCEDURES

Thirty-five mothers of children with DS and 47 mothers of TD children completed questionnaires about parenting, parental stress, child behavior problems, and child executive function.

OUTCOMES AND RESULTS

We found that mothers of children with DS use an authoritative parenting style less and a permissive parenting style more than mothers of TD children. Additionally, we found that mothers of children with DS use reasoning/induction and verbal hostility less and ignoring misbehavior more than mothers of TD children. All of these differences, except for those of reasoning/induction, were at least partially accounted for by the higher levels of parental stress in the DS group.

CONCLUSIONS AND IMPLICATIONS

Parenting interventions should be focused on reducing parental stress and training mothers to parent under stress in an effort to improve parenting techniques, which would, in theory, improve long-term child outcomes for children with DS.

摘要

背景

有效的育儿方式对孩子的发展至关重要。尽管已经有很多关于典型发育儿童育儿方式的研究,但很少有研究关注唐氏综合征儿童的育儿方式。

目的

本研究旨在比较唐氏综合征儿童的母亲和正常发育儿童的母亲的育儿风格和维度。

方法和程序

35 名唐氏综合征儿童的母亲和 47 名正常发育儿童的母亲完成了关于育儿、父母压力、儿童行为问题和儿童执行功能的问卷。

结果

我们发现,唐氏综合征儿童的母亲比正常发育儿童的母亲较少采用权威型育儿方式,较多采用放任型育儿方式。此外,我们发现唐氏综合征儿童的母亲比正常发育儿童的母亲较少采用说理/诱导和言语攻击,而较多采用忽视不良行为。除了说理/诱导的差异外,唐氏综合征组的父母压力水平较高,至少部分解释了这些差异。

结论和意义

育儿干预应侧重于降低父母压力,并培训母亲在压力下育儿,以改善育儿技巧,这理论上可以改善唐氏综合征儿童的长期儿童结局。

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