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在英国,对于神经功能障碍患者,是否有评估和提供辅助设备的标准程序?一项全国性调查。

Is there a standard procedure for assessing and providing assistive devices for people with neuro-disabling conditions in United Kingdom? A nation-wide survey.

机构信息

School of Health Sciences, University of East Anglia, Norwich, NR4 7TJ, United Kingdom; Department of Rehabilitation Sciences, KU Leuven, Tervuursevest 101, Heverlee, 3001, Belgium.

Norfolk Community Health and Care NHS Trust, Norfolk, United Kingdom.

出版信息

Disabil Health J. 2019 Jan;12(1):93-97. doi: 10.1016/j.dhjo.2018.08.003. Epub 2018 Aug 11.

Abstract

BACKGROUND

Assistive devices are currently provided to people with neuro-disabling conditions to promote or maintain independence in activities of daily living. However, it is unclear whether assessment procedures performed by health care professionals to guide the provision of assistive devices are standardized.

OBJECTIVE

To explore the assessment and service-delivery processes of assistive devices for people with multiple sclerosis, cerebrovascular disease and Parkinson's disease experiencing physical disability by health care professionals in the United Kingdom.

METHODS

A survey was conducted among UK health care professionals working with people with neuro-disabling conditions. Descriptive and content analyses were used to code survey data.

RESULTS

In total, 231 health care professionals completed the survey: 93 occupational therapists, 136 physiotherapists and 2 assistant practitioners. Less than half of the respondents (46%) reported use of local, national, or combined guidelines when assessing a service user's suitability or need for assistive devices. When guidelines were used, they were not consistent and not specifically for assistive devices. The respondents stated that when users were allocated small and portable assistive devices, they were supplied within four weeks. This period increased for large equipment, major home adaptions or if external specialist services and/or funding was needed.

CONCLUSIONS

Standardized operating procedures for assistive device provision are not being carried out within the UK. Variable access to assistive devices supplied by the state indicates inequity across regions. Future research should explore potential benefits of developing standardized assessment procedures for the provision of assistive devices and devise methods to reduce current variability in service delivery.

摘要

背景

目前为患有神经功能障碍的人提供辅助设备,以促进或维持日常生活活动的独立性。然而,目前尚不清楚医疗保健专业人员为指导辅助设备的提供而进行的评估程序是否标准化。

目的

探索英国医疗保健专业人员为患有多发性硬化症、脑血管病和帕金森病并伴有身体残疾的人评估和提供辅助设备的服务流程。

方法

对英国从事神经功能障碍患者工作的医疗保健专业人员进行了一项调查。采用描述性和内容分析法对调查数据进行编码。

结果

共有 231 名医疗保健专业人员完成了调查:93 名职业治疗师、136 名物理治疗师和 2 名助理医师。只有不到一半(46%)的受访者报告在评估服务使用者的适宜性或对辅助设备的需求时使用当地、国家或联合指南。当使用指南时,它们并不一致,也不是专门针对辅助设备的。受访者表示,当为用户分配小型便携式辅助设备时,会在四周内提供。如果需要外部专家服务和/或资金,则需要大型设备、主要家庭改造或需要更长的时间。

结论

在英国,辅助设备提供的标准化操作程序并未执行。国家提供的辅助设备的使用情况因地区而异,存在不公平性。未来的研究应探讨为辅助设备的提供制定标准化评估程序的潜在好处,并制定方法来减少当前服务提供的差异。

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