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多发性硬化症患者对辅助设备和技术的可接受性及可用性:一项针对职业治疗师的定性研究

Acceptability and usability of assistive equipment and technology by individuals with multiple sclerosis: A qualitative study with occupational therapists.

作者信息

Barnett Courtney, Murphy Angela, Cezar da Cruz Daniel

机构信息

MSc Occupational Therapy (Pre-Registration) Programme, School of Health, Leeds Beckett University, Leeds, UK.

出版信息

Br J Occup Ther. 2024 Nov;87(11):715-724. doi: 10.1177/03080226241253765. Epub 2024 May 22.

Abstract

INTRODUCTION

Assistive equipment and technology (AE&T) is often part of occupational therapy practice for individuals with multiple sclerosis (MS). We aim to explore the acceptability and usability of AE&T by people with MS from the perspective of occupational therapists.

METHODS

Our study applied a qualitative descriptive design, using semi-structured interviews conducted with five qualified occupational therapists with at least 6 months of experience in providing occupational therapy to adults with MS. Reflexive thematic analysis was used for data analysis.

FINDINGS

Three developed themes describe the occupational therapists' experiences: 'The cognitive impact of the illness rather than the physical', 'There's a drive to not let the MS win' and 'They have to experience it by doing'. Therapists perceive cognitive changes, the meaning of technology and a person-centred approach as elements influencing the acceptability and usability of AE&T.

CONCLUSION

Our findings highlight the importance of using core occupational therapy principles and approaches to best support people with MS in using AE&T effectively.

摘要

引言

辅助设备与技术(AE&T)通常是针对多发性硬化症(MS)患者的职业治疗实践的一部分。我们旨在从职业治疗师的角度探讨MS患者对AE&T的可接受性和可用性。

方法

我们的研究采用定性描述性设计,对五名合格的职业治疗师进行了半结构化访谈,这些治疗师在为成年MS患者提供职业治疗方面至少有6个月的经验。采用反思性主题分析法进行数据分析。

结果

三个形成的主题描述了职业治疗师的经历:“疾病的认知影响而非身体影响”、“有不让MS获胜的动力”和“他们必须通过实践来体验”。治疗师认为认知变化、技术的意义和以人为本的方法是影响AE&T可接受性和可用性的因素。

结论

我们的研究结果强调了运用职业治疗的核心原则和方法以最佳方式支持MS患者有效使用AE&T的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2c45/11887887/425213994020/10.1177_03080226241253765-fig1.jpg

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