1 Division of Physical Medicine and Rehabilitation, University of Utah, Salt Lake City, UT, USA.
2 National Institute of Neurology and Neurosurgery, Mexico City, Mexico.
Int J Psychiatry Med. 2019 May;54(3):203-216. doi: 10.1177/0091217418791460. Epub 2018 Oct 2.
This study examined the mediating role of caregiver distress on family factors and caregiver life satisfaction among an understudied population of Parkinson's disease caregiver in Mexico.
A cross-sectional design was used to examine psychosocial factors pertinent to caregiver of individuals with Parkinson's disease ( n = 95). Guided by a caregiver stress process model, relations among family factors (e.g., cohesion, flexibility, quality of functioning), gender, distress, and satisfaction with life among caregiver were examined. Mediation analyses were performed to test the role of caregiver distress on the associations between family factors, gender, and caregiver satisfaction with life.
Mediation models demonstrated that caregiver distress fully mediated the relation between quality of family functioning and caregiver satisfaction with life and partially mediated the association between family flexibility and caregiver satisfaction with life. Caregiver gender did not emerge as a significant covariate, and null results were found in the model examining family cohesion as a predictor.
These results underscore the critical role of caregiver distress and family factors on features of caregiver well-being, notably satisfaction with life. This evidence also offers cross cultural evidence for the caregiver stress process model, which has primarily been observed in Western samples. Accordingly, the need to build and disseminate empirically supported family-based treatments that emphasize caregiver distress is warranted.
本研究考察了墨西哥一个被低估的帕金森病照顾者群体中,照顾者痛苦在家庭因素和照顾者生活满意度之间的中介作用。
采用横断面设计,考察了与帕金森病患者照顾者相关的心理社会因素(例如,家庭凝聚力、灵活性、功能质量)、性别、痛苦和照顾者生活满意度。进行中介分析以检验照顾者痛苦在家庭因素、性别与照顾者生活满意度之间的关联中的中介作用。
中介模型表明,照顾者痛苦完全中介了家庭功能质量与照顾者生活满意度之间的关系,部分中介了家庭灵活性与照顾者生活满意度之间的关系。照顾者性别并未作为显著的协变量出现,而在考察家庭凝聚力作为预测因素的模型中则得到了零结果。
这些结果强调了照顾者痛苦和家庭因素对照顾者幸福感特征(特别是对生活满意度)的重要作用。这一证据也为主要在西方样本中观察到的照顾者压力过程模型提供了跨文化证据。因此,有必要建立和传播基于家庭的、有实证支持的治疗方法,强调照顾者的痛苦。