Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
Department of Sociology, Faculty of Arts, University of Calgary, Calgary, Alberta, Canada.
J Hum Nutr Diet. 2019 Feb;32(1):72-79. doi: 10.1111/jhn.12597. Epub 2018 Oct 2.
Coeliac disease is an autoimmune disorder triggered by the ingestion of gluten. In recent years, there has been considerable increase in the availability of gluten-free products in North America. The present study investigated how the recent proliferation of the gluten-free industry has affected individuals living with coeliac disease, with a primary focus on their social lives and relationships.
Interpretive phenomenology was utilised for study design and analysis. Semi-structured interviews were conducted with 17 adults diagnosed with coeliac disease in Calgary, Alberta. Interviews were audio recorded and then transcribed for analysis.
People living with coeliac disease experience the growth of the gluten-free industry as a 'double-edged sword'. Although they are grateful for more palatable gluten-free options, they are increasingly faced with misunderstandings about the severity of coeliac disease as a result of many noncoeliac disease individuals subscribing to the gluten-free diet. This 'double-edged sword' made certain types of social situations more easily manageable (e.g. more gluten-free options available at restaurants), whereas others produced distress (e.g. increased risk of inadvertently consuming gluten). Participants also felt they may be perceived or even perceived themselves differently (e.g. felt high maintenance). To help mitigate these social ramifications of following the gluten-free diet, participants utilised various strategies.
The sole medical recommendation of a gluten-free diet fails to acknowledge the ongoing difficulties those with coeliac disease can endure in the current gluten-free landscape. Recommendations beyond the gluten-free diet are advisable to alleviate many of the indirect burdens revealed in the present study.
乳糜泻是一种由麸质摄入引起的自身免疫性疾病。近年来，北美无麸质食品的供应有了相当大的增加。本研究调查了无麸质行业的最近扩张如何影响乳糜泻患者的生活，主要关注他们的社交生活和人际关系。
解释性现象学被用于研究设计和分析。在艾伯塔省卡尔加里对 17 名被诊断患有乳糜泻的成年人进行了半结构化访谈。访谈进行了录音，然后转录进行分析。
乳糜泻患者将无麸质行业的发展视为一把“双刃剑”。虽然他们对更美味的无麸质选择表示感激，但由于许多非乳糜泻患者选择无麸质饮食，他们越来越多地误解乳糜泻疾病的严重程度。这种“双刃剑”使某些类型的社交情况更容易处理（例如，餐馆提供更多的无麸质选择），而其他情况则会产生困扰（例如，无意中摄入麸质的风险增加）。参与者还觉得他们可能会被不同的方式看待，甚至自己也会以不同的方式看待自己（例如，感觉需要高度维护）。为了减轻遵循无麸质饮食带来的这些社交影响，参与者采用了各种策略。
仅推荐无麸质饮食并不能承认乳糜泻患者在当前无麸质环境中可能会遇到的持续困难。除了无麸质饮食之外，还建议采取其他建议，以减轻本研究中揭示的许多间接负担。
