Department of Health & Behavior Studies, Program in Nutrition, Teachers College, Columbia University, New York, NY, USA.
Department of Medicine, Celiac Disease Center, Columbia University Irving Medical Center, Harkness Pavilion, New York, NY, USA.
J Hum Nutr Diet. 2020 Dec;33(6):876-880. doi: 10.1111/jhn.12810. Epub 2020 Sep 25.
Portable gluten sensors are now commercially available to the public, although there is genuine uncertainty within the medical community over whether they should be used for coeliac disease management. The present study described qualitatively the experience of using a portable gluten sensor for 15 adults and 15 adolescents with coeliac disease participating in a 3-month pilot clinical trial.
Participants were 30 individuals, aged 13-70 years, with biopsy-confirmed coeliac disease on a gluten-free diet. All received a portable gluten sensor and were randomised to low, medium, and high numbers of single-use capsules. Open-ended questions addressed likes and dislikes using the portable gluten sensor after 3 months. Major themes were identified and described.
Participants liked that the portable gluten sensor provided extra assurance to check foods presented as gluten-free, the convenient size and portability, the added sense of control, and overall peace-of-mind. Participants disliked having attention drawn to them when using the sensor and feeling as if they were deterring others from eating. Participants also disliked the physical difficulty associated with using the capsules, questionable accuracy and the inability to test fermented foods. Adults were more enthusiastic about the sensor than adolescents.
Positive and negative experiences may be expected when using commercially available portable gluten sensors to help manage coeliac disease. As future versions of this and other gluten sensors become available, it will be important to investigate the relationship between users' experience with the sensors and long-term outcomes such as mucosal healing and quality of life.
便携式麸质传感器现已面向公众销售，但医学界对其是否应用于乳糜泻管理存在真正的不确定性。本研究定性描述了 15 名成年和 15 名青少年乳糜泻患者在为期 3 个月的试点临床试验中使用便携式麸质传感器的体验。
30 名年龄在 13-70 岁之间、接受无麸质饮食且活检证实为乳糜泻的参与者接受了便携式麸质传感器，并随机分配到低、中、高数量的一次性胶囊。使用开放式问题在 3 个月后询问对便携式麸质传感器的喜爱和不喜爱之处。确定并描述了主要主题。
参与者喜欢便携式麸质传感器提供了额外的保证，可以检查被认为是无麸质的食物，传感器体积小巧且便于携带，增加了控制感，并且总体上让人放心。参与者不喜欢在使用传感器时引起他人的注意，也不喜欢感觉自己在阻止他人进食。参与者还不喜欢使用胶囊带来的身体困难、准确性可疑以及无法测试发酵食品。成年人比青少年对传感器更感兴趣。
在使用市售的便携式麸质传感器来帮助管理乳糜泻时，可能会出现积极和消极的体验。随着未来版本的这种和其他麸质传感器的出现，研究用户对传感器的体验与黏膜愈合和生活质量等长期结果之间的关系将非常重要。
