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[卡塞雷斯医疗区癫痫患者的生活质量、社会耻辱感及治疗依从性评估:一项横断面研究]

[Evaluation of quality of life, social stigma and treatment adherence in patients with epilepsy in the Caceres Healthcare Area: a cross-sectional study].

作者信息

Salado-Medina V, Lopez-Espuela F, Falcon-Garcia A, Rico-Martin S, Gomez-Luque A, Casado-Naranjo I

机构信息

Complejo Hospitalario de Caceres, 10004 Caceres, Espana.

出版信息

Rev Neurol. 2018 Oct 16;67(8):281-286.

Abstract

INTRODUCTION

Epilepsy is a chronic disease with high prevalence. Its impact in the quality of life is influenced by factors like disease characteristics, comorbidities, stigma perception and treatment adherence.

AIM

To assess the quality of life, the social stigma and the treatment adherence of patients with epilepsy in our area.

PATIENTS AND METHODS

Descriptive, observational and cross-sectional study. Sociodemographic and clinical data were collected. We analyzed data on quality of life (QUOLIE-10), social stigma and treatment adherence through different questionnaires.

RESULTS

40 patients were studied. The mean age was 42.43 ± 17.20 years, and the onset of epilepsy was 25.88 ± 16.81 years. 55% were women. The score in the quality of life questionnaire was 19.28 ± 8.03 points in men and 17.00 ± 7.69 for women, this difference being not significant. There were also no significant differences for social stigma, with a mean of 11.50 ± 13.47 points in men and 6.00 ± 10.36 points for women (p = 0.152). According to the treatment adherence questionnaire (Morisky-Green), 70% of the patients studied were compliant with the treatment.

CONCLUSIONS

Patients with epilepsy in our environment have a good quality of life, probably related to good treatment adherence and compliance. There is low perceived social stigma but people with epilepsy still trend to hide their condition.

摘要

引言

癫痫是一种高发性慢性病。其对生活质量的影响受疾病特征、合并症、耻辱感认知及治疗依从性等因素影响。

目的

评估我们地区癫痫患者的生活质量、社会耻辱感及治疗依从性。

患者与方法

描述性、观察性横断面研究。收集社会人口统计学和临床数据。我们通过不同问卷分析生活质量(QUOLIE - 10)、社会耻辱感及治疗依从性数据。

结果

研究了40名患者。平均年龄为42.43±17.20岁,癫痫发病年龄为25.88±16.81岁。55%为女性。男性生活质量问卷得分19.28±8.03分,女性为17.00±7.69分,差异无统计学意义。社会耻辱感方面也无显著差异,男性平均分为11.50±13.47分,女性为6.00±10.36分(p = 0.152)。根据治疗依从性问卷(Morisky - Green),70%的研究患者治疗依从性良好。

结论

我们地区的癫痫患者生活质量良好,可能与良好的治疗依从性有关。社会耻辱感认知较低,但癫痫患者仍倾向于隐瞒病情。

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