Division of Pediatric Critical Care Medicine, Department of Pediatrics, Duke Children's Hospital, Durham, North Carolina.
Duke Cancer Institute, Duke University School of Medicine, Durham, North Carolina.
J Palliat Med. 2019 Sep;22(9):1149-1153. doi: 10.1089/jpm.2019.0378.
Over the past several years, pediatric critical care units increasingly count on the expert advisement of palliative care specialists. Given the limited availability of pediatric palliative care specialists, all palliative care clinicians may be required to care for pediatric patients and their families. Special considerations in caring for these patients include the relative importance of prognosis, involvement of child life, music and pet therapy, incorporation of parents in end-of-life rituals, care for siblings, use of medical technology, and prolonged duration of stay. The following top 10 tips provide recommendations for caring for seriously ill infants, children, adolescents, and the families of these critically ill pediatric patients. They are written by pediatric intensive care providers to address common issues around palliative care in intensive care units.
在过去的几年中，儿科重症监护病房越来越依赖于姑息治疗专家的专业建议。鉴于儿科姑息治疗专家的数量有限，所有姑息治疗临床医生都可能需要照顾儿科患者及其家属。照顾这些患者时需要特别考虑的因素包括预后的相对重要性、儿童生活的参与、音乐和宠物疗法、父母参与临终仪式、对兄弟姐妹的照顾、医疗技术的使用以及住院时间的延长。以下十大建议为照顾重病婴儿、儿童、青少年以及这些重病儿科患者的家属提供了建议。这些建议是由儿科重症监护提供者撰写的，旨在解决重症监护病房中姑息治疗常见的问题。
