Department of Pediatric Palliative Care, University Children's Hospital Zurich, Zurich, Switzerland.
Division of Palliative Care, Department of Anesthesia, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.
J Palliat Med. 2021 Nov;24(11):1725-1731. doi: 10.1089/jpm.2021.0439.
Pediatric palliative care (PPC) is different from palliative care (PC) for adults. However, conceptualizing PPC remains cumbersome due to the high heterogeneity of often rare diseases, the high diversity of disease trajectories, and the particular difficulty to predict the future of an individual, severely ill child. This article aims to provide an overview and critical reflection of different aspects of prognostication in children with PC needs. This includes different diseases from neurology to oncology, from the unborn baby to the young adult, new approaches in treatment, advance care planning, and, most important, communication with the affected child as well as parents.
儿科舒缓治疗(PPC)与成人舒缓治疗(PC)不同。然而,由于经常罕见疾病的高度异质性、疾病轨迹的高度多样性以及预测重病儿童未来的特殊困难,概念化 PPC 仍然很麻烦。本文旨在概述和批判性反思 PC 需求儿童的预后的不同方面。这包括从神经学到肿瘤学到胎儿到年轻成人的不同疾病,治疗的新方法,预先护理计划,以及最重要的是,与受影响的儿童以及父母进行沟通。