Katarina Pihl Lesnovska, Sussanne Börjeson, Gunilla Hollman Frisman, Henrik Hjortswang, Marika Wenemark
a Departments of Gastroenterology and Medical and Health Sciences , Linköping University , Linköping , Sweden.
b Department of Medical and Health Sciences, Faculty of Medicine , Linköping University , Linköping , Sweden.
Scand J Gastroenterol. 2018 Sep;53(9):1043-1050. doi: 10.1080/00365521.2018.1495759. Epub 2018 Oct 9.
Quality of care is important in lifelong illnesses such as inflammatory bowel disease (IBD). Valid, reliable and short questionnaires to measure quality of care among persons with IBD are needed. The aim of this study was to develop a patient-derived questionnaire measuring quality of care in persons with IBD.
The development of the questionnaire The Quality of Care -Questionnaire (QoC-Q) was based on a literature review of studies measuring quality of care, and the results of two qualitative studies aiming to identify the knowledge need and perception of health care among persons with IBD. Further development and evaluation was done by focus groups, individual testing and cognitive interviews with persons with IBD, as well as evaluation by a group of professionals. After the development, the questionnaire was tested for validity and test-retest reliability in 294 persons with IBD.
The QoC-Q is showing promising validity and reliability for measuring the subjective perception of quality of care. Further testing in clinical practice is suggested to assess if the QoC-Q can be used to evaluate care and areas of improvement in health care for persons living with IBD.
在炎症性肠病（IBD）等慢性病中，医疗质量至关重要。需要有效、可靠且简短的问卷来衡量IBD患者的医疗质量。本研究的目的是开发一份由患者自主设计的问卷，用于衡量IBD患者的医疗质量。
护理质量问卷（QoC-Q）的开发基于对衡量医疗质量的研究的文献综述，以及两项定性研究的结果，这两项定性研究旨在确定IBD患者的知识需求和对医疗保健的认知。通过焦点小组、对IBD患者的个体测试和认知访谈，以及一组专业人员的评估，进行了进一步的开发和评估。问卷开发完成后，在294名IBD患者中对其有效性和重测信度进行了测试。
QoC-Q在衡量医疗质量的主观认知方面显示出有前景的有效性和可靠性。建议在临床实践中进行进一步测试，以评估QoC-Q是否可用于评估IBD患者的医疗保健及改进领域。
