Servicio de Digestivo, Hospital Universitari Vall d'Hebron, España.
Unitat Atenció Crohn-Colitis, Hospital Universitari Vall d'Hebrón.
Rev Esp Enferm Dig. 2019 Aug;111(8):586-592. doi: 10.17235/reed.2019.6298/2019.
adequate knowledge of inflammatory bowel disease (IBD) is essential for a successful patient-centered management of IBD.
due to the scarcity of up-to-date tools for measuring IBD literacy, this single-center, prospective study aimed to develop and validate a new questionnaire to assess IBD-related knowledge.
the study included patients followed up at the Crohn-Colitis Care Unit (UACC) at the Hospital Vall d'Hebron (Barcelona, Spain). Patients admitted to the UACC for the first time were subsequently enrolled into a standard IBD educational program. A pilot questionnaire was developed and validated in 92 IBD patients by determining the internal consistency reliability (Cronbach's α test), feasibility, construct validity (correlation with the Crohn's and Colitis Knowledge [CCKNOW] questionnaire and a knowledge visual analog scale [VAS]) and sensitivity (score change before and after a standard IBD educational program). The questionnaire, named "Qüestionari Coneixements Malaltia Inflamatòria Intestinal Catalunya" (IBD-knowledge questionnaire Catalonia) (QUECOMIICAT) was written in Spanish and had 25 items addressing six dimensions: general concepts, clinic, treatment, surgery, habits and social context.
the median (interquartile range) completion time was 15 (10-20) minutes and the floor and ceiling effects were 1.1% and 2.1%, respectively. The Cronbach's α coefficient was α = 0.75. QUECOMIICAT significantly correlated with the VAS (rho = 0.34, p < 0.01) and CCKNOW questionnaires (rho = 0.74, p < 0.01). Patient knowledge significantly increased 24 hours after attending a standard IBD educational program and remained statistically significant one month later (Pearson's test-retest correlation coefficient r = 0.81, p < 0.001).
in conclusion, the QUECOMIICAT questionnaire is a new up-to-date tool to assess IBD-related knowledge with good feasibility and validation results for use in the routine clinical practice.
充分了解炎症性肠病（IBD）对于成功实施以患者为中心的 IBD 管理至关重要。
由于缺乏最新的 IBD 素养衡量工具，本单中心前瞻性研究旨在开发和验证一种新的问卷，以评估与 IBD 相关的知识。
本研究纳入了在西班牙巴塞罗那 Vall d'Hebron 医院的克罗恩结肠炎护理中心（UACC）就诊的患者。首次入住 UACC 的患者随后被纳入标准的 IBD 教育计划。通过确定内部一致性可靠性（Cronbach's α 检验）、可行性、结构有效性（与克罗恩病和结肠炎知识问卷[CCKNOW]和知识视觉模拟量表[VAS]的相关性）和敏感性（标准 IBD 教育计划前后的评分变化），对 92 例 IBD 患者进行了初步问卷的开发和验证。该问卷命名为“Qüestionari Coneixements Malaltia Inflamatòria Intestinal Catalunya”（加泰罗尼亚 IBD 知识问卷）（QUECOMIICAT），用西班牙语编写，共有 25 个条目，涵盖六个维度：一般概念、临床、治疗、手术、习惯和社会背景。
中位（四分位距）完成时间为 15（10-20）分钟，地板效应和天花板效应分别为 1.1%和 2.1%。Cronbach's α 系数为α=0.75。QUECOMIICAT 与 VAS（rho=0.34，p<0.01）和 CCKNOW 问卷（rho=0.74，p<0.01）显著相关。患者知识在参加标准 IBD 教育计划后 24 小时内显著增加，一个月后仍保持统计学意义（Pearson 测试-再测试相关系数 r=0.81，p<0.001）。
总之，QUECOMIICAT 问卷是一种新的、最新的评估 IBD 相关知识的工具，具有良好的可行性和验证结果，可用于常规临床实践。
