Johns Hopkins University Evidence-based Practice Center.
Evid Rep Technol Assess (Full Rep). 2016 Sep(222):1-70. doi: 10.23970/AHRQEPCERTA222.
Linking national, State, and community data systems, such as those used for medical service billing, to existing data from suicide prevention efforts could facilitate the assessment of longer term outcomes. Our objective was to identify and describe data systems that can be linked to data from studies of youth suicide prevention interventions and to identify analytic approaches to advance youth suicide prevention research.
We conducted a systematic review to identify studies of suicide prevention interventions and three types of searches to identify data systems providing suicide-related outcomes: (1) a literature search, (2) an environmental scan of gray literature, and (3) a targeted search, through contact with relevant individuals, in six States, two cities, and one tribal community.
Two independent reviewers screened all results. Studies and data systems had to be based in the United States; include individuals between 0 and 25 years of age; and include suicide, suicide attempt, or suicide ideation as an outcome.
Of the 47 studies (described in 59 articles) of suicide prevention interventions identified in our systematic review, only 6 studied outcomes by linking to external data systems and only 12 explored treatment heterogeneity through the effects of moderators such as gender or race/ethnicity. We identified 153 unique and potentially linkable external data systems, 66 of which we classified as "fairly accessible" with data dictionaries available.
There is potential for linking existing data systems with suicide prevention efforts to assess the broader and extended impact of suicide prevention interventions. However, sparse availability of data dictionaries and lack of adherence to standard data elements limit the potential utility of linking prevention efforts with data systems.
将国家、州和社区数据系统（如用于医疗服务计费的系统）与现有的自杀预防工作数据相联系，可以促进对更长期结果的评估。我们的目标是确定和描述可以与青年自杀预防干预研究数据相联系的数据系统，并确定分析方法以推进青年自杀预防研究。
我们进行了系统评价，以确定自杀预防干预措施的研究，并进行了三种搜索，以确定提供与自杀相关结果的数据系统：（1）文献搜索，（2）灰色文献的环境扫描，以及（3）通过与相关人员联系，在六个州、两个城市和一个部落社区进行有针对性的搜索。
两名独立的审查员筛选了所有结果。研究和数据系统必须基于美国；包括 0 至 25 岁的个体；并将自杀、自杀未遂或自杀意念作为结果。
在我们的系统评价中确定的 47 项（59 篇文章中描述的）自杀预防干预措施研究中，只有 6 项通过与外部数据系统相联系来研究结果，只有 12 项通过性别或种族/民族等调节因素的影响来探索治疗异质性。我们确定了 153 个独特的、潜在可联系的外部数据系统，其中 66 个我们将其归类为“相当容易获得”，因为有数据字典可用。
将现有的数据系统与自杀预防工作联系起来，以评估自杀预防干预措施的更广泛和更长期的影响是有潜力的。然而，数据字典的稀缺可用性以及缺乏对标准数据元素的遵守限制了将预防工作与数据系统联系起来的潜在效用。
