Traumer Line, Jacobsen Michael Hviid, Laursen Birgitte Schantz
Clinical Nursing Research Unit, Aalborg University Hospital, Aalborg, Denmark.
Department of Sociology and Social Work, Aalborg University, Aalborg, Denmark.
Scand J Caring Sci. 2019 Mar;33(1):57-66. doi: 10.1111/scs.12600. Epub 2018 Oct 15.
Sexual dysfunction is common in patients diagnosed with cancer or chronic disease, having psychological, emotional and social ramifications. The consequences are ultimately significant impaired quality of life and reduced mental well-being, and it therefore requires professional attention. However, evidence suggests that sexuality is a taboo subject in the healthcare system, as healthcare professionals and patients rarely initiate conversations on this subject.
Therefore, the purpose of this study was to understand how patients diagnosed with cancer or chronic disease experiencing sexual dysfunction experience sexuality as a taboo subject in the healthcare system.
Ten women diagnosed with cancer or chronic disease experiencing sexual dysfunction were recruited from the Sexological Centre in Aalborg, Denmark. Using an interview guide, semi-structured interviews were conducted and a qualitative thematic analysis was performed.
The analysis revealed that sexuality is a sensitive and taboo subject in the Danish healthcare system. Some patients initiated conversations about their sexuality, but felt rejected by healthcare professionals, who dismissed these initiatives, whereas other patients were reluctant to discuss sexuality, but did not experience healthcare professionals bringing up sexuality either. Despite these differences between patients' experiences, sexuality constituted a taboo subject, as patients or healthcare professionals deliberately avoided discussing the patients' sexuality-related issues.
Communication about sexuality is essential for improving patients' well-being, and healthcare professionals should routinely address sexuality and sexual intimacy with patients diagnosed with cancer or chronic disease in order to break the taboo and accommodate patients' needs.
性功能障碍在被诊断患有癌症或慢性病的患者中很常见,会产生心理、情感和社会方面的影响。其后果最终是生活质量严重受损和心理健康下降,因此需要专业关注。然而,有证据表明,在医疗保健系统中,性是一个禁忌话题,因为医护人员和患者很少主动谈及这个话题。
因此,本研究的目的是了解被诊断患有癌症或慢性病且有性功能障碍的患者如何将性视为医疗保健系统中的一个禁忌话题。
从丹麦奥尔堡性学中心招募了10名被诊断患有癌症或慢性病且有性功能障碍的女性。使用访谈指南进行半结构化访谈,并进行定性主题分析。
分析表明,在丹麦医疗保健系统中,性是一个敏感且禁忌的话题。一些患者主动谈及自己的性问题,但感觉被医护人员拒绝,医护人员驳回了这些主动提及的话题;而其他患者则不愿讨论性问题,但也没有经历过医护人员主动提及性话题。尽管患者的经历存在这些差异,但性构成了一个禁忌话题,因为患者或医护人员故意避免讨论与患者性相关的问题。
关于性的沟通对于改善患者的幸福感至关重要,医护人员应该定期与被诊断患有癌症或慢性病的患者谈论性和性亲密关系,以打破禁忌并满足患者的需求。