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患有痛性糖尿病周围神经病变:焦点小组对恐惧和应对策略的见解。

Living with painful diabetic neuropathy: insights from focus groups into fears and coping strategies.

机构信息

a Research Centre for Nutrition, Lifestyle, and Exercise, Faculty of Health , Zuyd University of Applied Sciences , Heerlen , The Netherlands.

b Department of Rehabilitation Medicine , Maastricht University , Maastricht , The Netherlands.

出版信息

Psychol Health. 2019 Jan;34(1):84-105. doi: 10.1080/08870446.2018.1518526. Epub 2018 Oct 15.

DOI:10.1080/08870446.2018.1518526
PMID:30320508
Abstract

OBJECTIVE

Painful diabetic neuropathy (PDN) is known to negatively affect quality of life. Being physically active is a crucial part of successful diabetes self-management, but regimen adherence is often low. Coping strategies and fears have shown to be related to less physical activity (PA). The aim of the present study was to obtain more in-depth information on psychological risk factors leading to less PA in persons with PDN.

DESIGN

Three semi-structured focus group interviews were conducted with a representative sample of persons with PDN (N = 12). Data were transcribed verbatim and analysed using a hybrid method of thematic analyses and a grounded theory approach.

MAIN OUTCOME MEASURES

Fears and coping strategies related to PA in persons with PDN.

RESULTS

Several specific fears were identified; fear of hypoglycaemia, fear of pain increase, fear of total exhaustion, fear of physical injury, fear of falling, fear of loss of identity, and fear of negative evaluation by others. To cope with these fears, avoidance, remaining active, cognitive distraction, and acceptance strategies were described.

CONCLUSION

In persons with PDN, diabetes-related fears and pain-related fears play a role in less engagement in PA, indicating the need for new methods for improving self-management in persons with PDN.

摘要

目的

疼痛性糖尿病周围神经病变(PDN)已知会对生活质量产生负面影响。积极运动是成功进行糖尿病自我管理的关键部分,但治疗方案的依从性往往较低。应对策略和恐惧已被证明与较少的身体活动(PA)有关。本研究的目的是获得更多关于导致 PDN 患者身体活动减少的心理风险因素的深入信息。

设计

对 PDN 患者(N=12)的代表性样本进行了三次半结构化焦点小组访谈。逐字转录数据,并使用主题分析和扎根理论方法的混合方法进行分析。

主要结果测量

PDN 患者与 PA 相关的恐惧和应对策略。

结果

确定了几种特定的恐惧;低血糖恐惧、疼痛加剧恐惧、总疲劳恐惧、身体伤害恐惧、跌倒恐惧、身份丧失恐惧和他人负面评价恐惧。为了应对这些恐惧,描述了回避、保持活跃、认知分散和接受策略。

结论

在 PDN 患者中,与糖尿病相关的恐惧和与疼痛相关的恐惧在身体活动参与度较低中起作用,表明需要新的方法来改善 PDN 患者的自我管理。

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