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It is not just about "the trial": the critical role of effective engagement and participatory practices for moving the HIV research field forward.这不仅仅关乎“试验”：有效参与和参与式实践在推动艾滋病研究领域发展中的关键作用。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25179. doi: 10.1002/jia2.25179.
2
The ethical challenges and opportunities of implementing engagement strategies in health research.实施健康研究参与策略的伦理挑战与机遇。
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Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence.利益相关者参与以告知 HIV 临床试验：证据的系统评价。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25174. doi: 10.1002/jia2.25174.
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'It looks like you just want them when things get rough': civil society perspectives on negative trial results and stakeholder engagement in HIV prevention trials.“看起来只有在情况艰难时才想要他们参与进来”：民间社会对 HIV 预防试验负面试验结果及利益攸关方参与的看法。
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Gender equality in leadership of HIV care cascade clinical trials: A methodological study.艾滋病毒治疗级联临床试验领导力中的性别平等：一项方法学研究。
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J Empir Res Hum Res Ethics. 2022 Jul;17(3):292-303. doi: 10.1177/15562646221078415. Epub 2022 Feb 14.
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Ground-Truthing the Experiences of Homeless Older Adults' Recent Stays with Family and Friends: A Case Study of Participatory Data Analysis.实地调查无家可归的老年人最近与家人和朋友居住的经历：参与式数据分析案例研究。
J Health Care Poor Underserved. 2022;33(1):268-285. doi: 10.1353/hpu.2022.0020.
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HIV prevention clinical trials' community engagement guidelines: inequality, and ethical conflicts.艾滋病病毒预防临床试验的社区参与指南：不平等与伦理冲突
Glob Bioeth. 2020 Jun 5;31(1):47-66. doi: 10.1080/11287462.2020.1773061.
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Why ethics guidance needs to be updated for contemporary HIV prevention research.为何当代HIV预防研究需要更新伦理指导。
J Int AIDS Soc. 2020 May;23(5):e25500. doi: 10.1002/jia2.25500.
8
Community stakeholder engagement during a vaccine demonstration project in Nigeria: lessons on implementation of the good participatory practice guidelines.尼日利亚疫苗示范项目期间社区利益相关者的参与：良好参与实践指南实施的经验教训
Pan Afr Med J. 2019 Dec 5;34:179. doi: 10.11604/pamj.2019.34.179.18458. eCollection 2019.
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What lessons it might teach us? Community engagement in HIV research.它可能会给我们带来哪些启示？社区参与艾滋病研究。
Curr Opin HIV AIDS. 2020 Mar;15(2):142-149. doi: 10.1097/COH.0000000000000605.
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A landscape analysis of HIV cure-related clinical trials and observational studies in 2018.2018年艾滋病治愈相关临床试验和观察性研究的全景分析。
J Virus Erad. 2019 Nov 4;5(4):212-219. doi: 10.1016/S2055-6640(20)30030-3.

本文引用的文献

1
Collateral benefits: how the practical application of Good Participatory Practice can strengthen HIV research in sub-Saharan Africa.附带利益：良好参与式实践的实际应用如何加强撒哈拉以南非洲的艾滋病毒研究。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25175. doi: 10.1002/jia2.25175.
2
Power to participants: a call for person-centred HIV prevention services and research.赋予参与者权力：呼吁以人为主的艾滋病毒预防服务和研究。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25167. doi: 10.1002/jia2.25167.
3
Strengthening stakeholder engagement through ethics review in biomedical HIV prevention trials: opportunities and complexities.通过生物医学 HIV 预防试验中的伦理审查加强利益攸关方的参与：机会与复杂性。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25172. doi: 10.1002/jia2.25172.
4
Using theory of change frameworks to develop evaluation strategies for research engagement: results of a pre-pilot study.运用变革理论框架制定研究参与度评估策略：预试点研究结果。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25181. doi: 10.1002/jia2.25181.
5
Building effective multilevel HIV prevention partnerships with Black men who have sex with men: experience from HPTN 073, a pre-exposure prophylaxis study in three US cities.与男男性行为黑人建立有效的多层次艾滋病预防伙伴关系：来自HPTN 073的经验，一项在美国三个城市开展的暴露前预防研究
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25180. doi: 10.1002/jia2.25180.
6
Qualitative research on community experiences in large HIV research trials: what have we learned?大型 HIV 研究试验中社区经验的定性研究：我们学到了什么？
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25173. doi: 10.1002/jia2.25173.
7
Village community mobilization is associated with reduced HIV incidence in young South African women participating in the HPTN 068 study cohort.社区动员与降低参加 HPTN 068 研究队列的南非年轻女性中的 HIV 发病率有关。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25182. doi: 10.1002/jia2.25182.
8
Stakeholder engagement to inform HIV clinical trials: a systematic review of the evidence.利益相关者参与以告知 HIV 临床试验：证据的系统评价。
J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25174. doi: 10.1002/jia2.25174.
9
Evidence for scale up: the differentiated care research agenda.扩大规模的证据：差异化护理研究议程。
J Int AIDS Soc. 2017 Jul 21;20(Suppl 4):22024. doi: 10.7448/IAS.20.5.22024.
10
Towards a Science of Community Stakeholder Engagement in Biomedical HIV Prevention Trials: An Embedded Four-Country Case Study.迈向生物医学艾滋病毒预防试验中社区利益相关者参与的科学：一项四国嵌入式案例研究。
PLoS One. 2015 Aug 21;10(8):e0135937. doi: 10.1371/journal.pone.0135937. eCollection 2015.

It is not just about "the trial": the critical role of effective engagement and participatory practices for moving the HIV research field forward.

作者信息

MacQueen Kathleen M, Auerbach Judith D

机构信息

Global Health Research, FHI 360, Durham, NC, USA.

Department of Medicine, University of California, San Francisco, CA, USA.

出版信息

J Int AIDS Soc. 2018 Oct;21 Suppl 7(Suppl Suppl 7):e25179. doi: 10.1002/jia2.25179.

DOI:10.1002/jia2.25179
PMID:30334608
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6193314/
Abstract
摘要