Rajamani Sripriya, Kayser Ann, Emerson Emily, Solarz Sarah
Informatics Programs, School of NursingUniversity of Minnesota, Minneapolis, Minnesota.
Minnesota Electronic Disease Surveillance System (MEDSS) Operations, Infectious Disease Epidemiology Prevention and Control Division, Minnesota Department of Health, St. Paul, Minnesota.
Online J Public Health Inform. 2018 Sep 21;10(2):e204. doi: 10.5210/ojphi.v10i2.9317. eCollection 2018.
Past and present national initiatives advocate for electronic exchange of health data and emphasize interoperability. The critical role of public health in the context of disease surveillance was recognized with recommendations for electronic laboratory reporting (ELR). Many public health agencies have seen a trend towards centralization of information technology services which adds another layer of complexity to interoperability efforts.
The study objective was to understand the process of data exchange and its impact on the quality of data being transmitted in the context of electronic laboratory reporting to public health. This was conducted in context of Minnesota Electronic Disease Surveillance System (MEDSS), the public health information system for supporting infectious disease surveillance in Minnesota. Data Quality (DQ) dimensions by Strong et al., was chosen as the guiding framework for evaluation.
The process of assessing data exchange for electronic lab reporting and its impact was a mixed methods approach with qualitative data obtained through expert discussions and quantitative data obtained from queries of the MEDSS system. Interviews were conducted in an open-ended format from November 2017 through February 2018. Based on these discussions, two high level categories of data exchange process which could impact data quality were identified: onboarding for electronic lab reporting and internal data exchange routing. This in turn comprised of ten critical steps and its impact on quality of data was identified through expert input. This was followed by analysis of data in MEDSS by various criteria identified by the informatics team.
All DQ metrics (Intrinsic DQ, Contextual DQ, Representational DQ, and Accessibility DQ) were impacted in the data exchange process with varying influence on DQ dimensions. Some errors such as improper mapping in electronic health records (EHRs) and laboratory information systems had a cascading effect and can pass through technical filters and go undetected till use of data by epidemiologists. Some DQ dimensions such as accuracy, relevancy, value-added data and interpretability are more dependent on users at either end of the data exchange spectrum, the relevant clinical groups and the public health program professionals. The study revealed that data quality is dynamic and on-going oversight is a combined effort by MEDSS Informatics team and review by technical and public health program professionals.
With increasing electronic reporting to public health, there is a need to understand the current processes for electronic exchange and their impact on quality of data. This study focused on electronic laboratory reporting to public health and analyzed both onboarding and internal data exchange processes. Insights gathered from this research can be applied to other public health reporting currently (e.g. immunizations) and will be valuable in planning for electronic case reporting in near future.
过去和现在的国家倡议都提倡健康数据的电子交换,并强调互操作性。在疾病监测背景下,公共卫生的关键作用通过电子实验室报告(ELR)建议得到认可。许多公共卫生机构都出现了信息技术服务集中化的趋势,这给互操作性工作增加了另一层复杂性。
本研究的目的是了解在向公共卫生机构进行电子实验室报告的背景下数据交换的过程及其对所传输数据质量的影响。这项研究是在明尼苏达电子疾病监测系统(MEDSS)的背景下进行的,MEDSS是明尼苏达州支持传染病监测的公共卫生信息系统。选择Strong等人提出的数据质量(DQ)维度作为评估的指导框架。
评估电子实验室报告数据交换过程及其影响采用了混合方法,通过专家讨论获得定性数据,通过查询MEDSS系统获得定量数据。从2017年11月到2018年2月以开放式格式进行访谈。基于这些讨论,确定了可能影响数据质量的两类高层次数据交换过程:电子实验室报告的加入过程和内部数据交换路由。这反过来又包括十个关键步骤,并通过专家意见确定其对数据质量的影响。随后,由信息学团队确定的各种标准对MEDSS中的数据进行分析。
在数据交换过程中,所有数据质量指标(内在数据质量、上下文数据质量、表示数据质量和可访问性数据质量)都受到影响,对数据质量维度的影响各不相同。一些错误,如电子健康记录(EHR)和实验室信息系统中的映射不当,具有级联效应,并且可以通过技术过滤器,直到流行病学家使用数据时才被发现。一些数据质量维度,如准确性、相关性、增值数据和可解释性,更多地依赖于数据交换两端的用户、相关临床群体和公共卫生项目专业人员。研究表明,数据质量是动态的,持续监督是MEDSS信息学团队与技术和公共卫生项目专业人员审查的共同努力。
随着向公共卫生机构的电子报告不断增加,有必要了解当前的电子交换过程及其对数据质量的影响。本研究侧重于向公共卫生机构的电子实验室报告,并分析了加入过程和内部数据交换过程。从这项研究中收集到的见解可应用于当前的其他公共卫生报告(如免疫接种),并将对近期电子病例报告的规划具有重要价值。