Fletcher Kathryn, Foley Fiona, Murray Greg
Centre for Mental Health, Faculty of Health, Arts and Design, Swinburne University of Technology, Melbourne, Australia.
J Med Internet Res. 2018 Oct 24;20(10):e11160. doi: 10.2196/11160.
Bipolar disorder (BD) is a complex, relapsing mood disorder characterized by considerable morbidity and mortality. Web-based self-management interventions provide marked opportunities for several chronic mental health conditions. However, Web-based self-management programs targeting BD are underrepresented compared with programs targeting other psychiatric conditions.
This paper aims at facilitating future research in the area of self-management of BD and draws insights from the development of one such intervention-the Online, Recovery-Oriented Bipolar Individualised Tool (ORBIT)-that is aimed at improving the quality of life of people with BD.
We have discussed the opportunities and challenges in developing an engaging, evidence-based, safe intervention within the context of the following three nested domains: (1) intervention development; (2) scientific testing of the intervention; and (3) ethical framework including risk management.
We gained the following insights across the three abovementioned overlapping domains: Web-based interventions can be optimized through (1) codesign with consumers with lived experience to ensure relevance and appropriateness to the target audience; (2) novel content development processes that iteratively combine evidence-based information with lived experience perspectives, capitalizing on multimedia (eg, videos) that the digital health space provides; and (3) incorporating Web-based communities to connect end users and promote constructive engagement by access to a Web-based coach.
Self-management is effective in BD, even for those on the more severe end of the spectrum. While there are challenges to be aware of, guided self-management programs, such as those offered by the ORBIT project, which are specifically developed for Web-based delivery provide highly accessible, engaging, and potentially provocative treatments for chronically ill populations who may otherwise have never engaged with treatment. Key questions about engagement, effectiveness, and cost-effectiveness will be answered by the ORBIT project over the next 18 months.
双相情感障碍(BD)是一种复杂的、复发性情绪障碍,具有较高的发病率和死亡率。基于网络的自我管理干预为多种慢性心理健康状况提供了显著机会。然而,与针对其他精神疾病的项目相比,针对双相情感障碍的基于网络的自我管理项目的数量较少。
本文旨在促进双相情感障碍自我管理领域的未来研究,并从一种此类干预措施——在线、以康复为导向的双相情感障碍个性化工具(ORBIT)——的开发中汲取见解,该工具旨在提高双相情感障碍患者的生活质量。
我们在以下三个嵌套领域的背景下讨论了开发一种引人入胜、基于证据且安全的干预措施的机会和挑战:(1)干预措施开发;(2)干预措施的科学测试;(3)包括风险管理在内的伦理框架。
我们在上述三个重叠领域中获得了以下见解:基于网络的干预措施可以通过以下方式进行优化:(1)与有实际生活经验的消费者共同设计,以确保与目标受众的相关性和适用性;(2)新颖的内容开发流程,将基于证据的信息与实际生活经验观点反复结合,利用数字健康领域提供的多媒体(如视频);(3)纳入基于网络的社区,以连接最终用户并通过接入基于网络的指导教练促进建设性参与。
自我管理在双相情感障碍中是有效的,即使对于病情较为严重的患者也是如此。虽然需要注意一些挑战,但诸如ORBIT项目提供的那种专门为网络交付而开发的指导性自我管理项目,为那些可能从未接受过治疗的慢性病患者提供了高度可及、引人入胜且可能具有启发性的治疗方法。ORBIT项目将在未来18个月内回答有关参与度、有效性和成本效益的关键问题。