Lima Marize Conceição Ventin, Barbosa Fernanda Ribeiro, Santos Danielle Christine Moura Dos, Nascimento Raphaela Delmondes do, D'Azevedo Stephanie Steremberg Pires
Universidade de Pernambuco (UPE). Recife, Pernambuco, Brasil.
Universidade Estadual da Paraíba (UEPB). Campina Grande, Paraíba, Brasil.
Rev Gaucha Enferm. 2018 Oct 22;39:e20180045. doi: 10.1590/1983-1447.2018.20180045.
To analyze the self-care practices on the face, hands and feet carried out by people affected by Hansen's disease.
A qualitative study, carried out in reference units for Hansen's disease in Pernambuco, between May 2014 and April 2015, with 24 people. Data was collected through the semi-structured interview and content analysis was carried out.
Two categories emerged: Knowledge and execution of self-care practices in Leprosy and Singularities and challenges for self-care. The study found that respondents are familiar with information about face, hand and foot care, but report difficulties such as low income to acquire material for self-care, lack of time, and some lack of interest. Most of them already presented a degree of incapacity.
The training of professionals who work on the empowerment of people facing the disease, guidelines on prevention of disabilities and access to inputs for carrying out self-care are necessary.
分析麻风病患者在面部、手部和足部所进行的自我护理行为。
2014年5月至2015年4月期间,在伯南布哥州的麻风病参考单位对24人开展了一项定性研究。通过半结构化访谈收集数据并进行内容分析。
出现了两类情况:麻风病自我护理行为的知识与实施以及自我护理的独特之处与挑战。研究发现,受访者熟悉有关面部、手部和足部护理的信息,但报告了一些困难,如收入低难以获取自我护理材料、缺乏时间以及部分人缺乏兴趣。他们中的大多数人已经出现了一定程度的残疾。
有必要对致力于增强患者能力的专业人员进行培训,制定预防残疾的指导方针,并提供进行自我护理的物资。