Department of Anesthesiology and Critical Care, Perelman School of Medicine, University of Pennsylvania and Children's Hospital of Philadelphia, Philadelphia, Pennsylvania;
Divisions of Pediatric Critical Care Medicine and Pediatric Bioethics, University of Washington, Seattle, Washington.
Pediatrics. 2018 Nov;142(Suppl 3):S178-S186. doi: 10.1542/peds.2018-0516I.
Shared decision-making in pediatrics is based on a trusting partnership between parents, clinicians, and sometimes patients, wherein all stakeholders explore values and weigh options. Within that framework, clinicians often have an obligation to provide guidance. We describe a range of ethically justifiable clinician directiveness that could be appropriate in helping families navigate serious pediatric illness. The presentation of "default" options and informed nondissent as potential strategies are discussed. The degree of clinician directiveness may vary even for decisions that are equally "shared." A myriad of factors affect how directive a clinician can or should be. Some of the most important factors are the degree of prognostic certainty and the family's desire for guidance, but others are important as well, such as the urgency of the decision; the relationship between the clinician, patient, and family; the degree of team consensus; and the burdens and benefits of therapy. Directiveness should be considered an important tool in a clinician's armamentarium and is one that can be used to support families in stressful and emotionally difficult situations.
儿科的共同决策基于父母、临床医生(有时还有患者)之间的信任伙伴关系,在此框架下,所有利益相关者共同探讨价值观并权衡各种选择。在此框架内,临床医生通常有提供指导的义务。我们描述了一系列在帮助家庭应对严重儿科疾病时具有伦理合理性的临床医生指导方法。我们还讨论了“默认”选项和知情不同意作为潜在策略的呈现。即使对于同样“共同”的决策,临床医生的指导程度也可能有所不同。许多因素会影响临床医生的指导程度。一些最重要的因素是预后的确定性程度和家庭对指导的渴望程度,但其他因素也很重要,例如决策的紧迫性、临床医生、患者和家庭之间的关系、团队共识的程度以及治疗的负担和益处。指导应该被视为临床医生的重要工具之一,它可以用来在紧张和情绪困难的情况下为家庭提供支持。