Nassery Wazhma, Landgren Kajsa
Region Skåne , Lund , Sweden.
Department of Health Sciences, Faculty of Medicine, Lund University , Lund , Sweden.
Compr Child Adolesc Nurs. 2019 Dec;42(4):265-279. doi: 10.1080/24694193.2018.1528310. Epub 2018 Nov 2.
The aim of this study was to explore parents' experiences of sleep and rest while admitted to hospital together with their ill child. When a child is hospitalized, it can be a traumatic experience for the entire family. Adaptation to the new situation and new parental responsibilities is necessary. Hospitalized children demand more supervision and care, making sleep disturbance a common challenge among these parents. A qualitative exploratory interview study was conducted using semi-structured individual or couple interviews with 17 parents (12 mothers and five fathers) admitted together with their ill child for shorter or longer periods at pediatric wards at a university hospital in Sweden. Interviews were analyzed with content analysis. Sufficient amount of sleep and rest was described as vital for parental functioning. The main theme emerged with three subthemes. describe experiences such as disturbing sounds and uncomfortable beds. describe how supportive relations with spouses, relatives, nurses, and doctors were experienced as strengthening the parental confidence and helping parents to relax. Parents wanted to participate in the care but appreciated help from the nurses when they needed rest or support. The last subtheme, , describe how continuous information about the child's care and prognosis was experienced as the most important factor to feel secure and calm. Parents expressed that a possibility to buy lunch and dinner at the ward would greatly relieve parents' stress and help them rest. Parents in this study were grateful that they were allowed to stay by their child's side, but pointed out improvement opportunities. Single rooms with comfortable beds for the parents were in high demand to promote relaxation and sleep. Continuous, adjusted, information was seen as important. All hospitalized children have the right to partake in their own treatment and care, and they need a parent at their side. By optimizing parents' sleep and rest in the hospital, a more positive experience of the hospitalization can be achieved for the entire family.
本研究的目的是探讨父母与患病子女一同住院时的睡眠和休息体验。当孩子住院时，这对整个家庭来说可能是一次痛苦的经历。适应新情况和承担新的父母责任是必要的。住院的孩子需要更多的监督和照顾，这使得睡眠干扰成为这些父母面临的一个常见挑战。我们进行了一项定性探索性访谈研究，采用半结构化的个人或夫妻访谈，对象是17位父母（12位母亲和5位父亲），他们与患病的孩子在瑞典一家大学医院的儿科病房短期或长期住院。访谈采用内容分析法进行分析。充足的睡眠和休息被描述为对父母正常生活至关重要。主要主题出现了三个子主题。第一个子主题描述了诸如干扰性声音和不舒服的床等经历。第二个子主题描述了与配偶、亲属、护士和医生的支持性关系如何被体验为增强了父母的信心并帮助父母放松。父母希望参与孩子的护理，但在需要休息或支持时感激护士的帮助。最后一个子主题描述了关于孩子护理和预后的持续信息如何被体验为感到安心和平静的最重要因素。父母表示在病房购买午餐和晚餐的可能性将极大地减轻父母的压力并帮助他们休息。本研究中的父母感激被允许陪伴在孩子身边，但也指出了改进的机会。对配备舒适床铺的单人病房有很高的需求，以促进放松和睡眠。持续的、经过调整的信息被视为很重要。所有住院儿童都有权参与自己的治疗和护理，并且他们需要父母在身边。通过优化父母在医院的睡眠和休息，可以为整个家庭实现更积极的住院体验。
