Lam Lai Wah, Chang Anne M, Morrissey Jean
The Nethersole School of Nursing, The Chinese University of Hong Kong, Room 828, Esther Lee Building, Chung Chi College, Shatin, New Territories, Hong Kong.
Int J Nurs Stud. 2006 Jul;43(5):535-45. doi: 10.1016/j.ijnurstu.2005.07.009. Epub 2005 Sep 6.
The introduction of unrestricted visiting hours has led to the encouragement of parents to stay with and participate in the care of their hospitalised child. In order to stay with the hospitalised child, parents have to be away from home or work, which in turn impacts on their personal and family life. However, no published study on parents' experiences of childcare participation during paediatric hospitalisation has been found for a Chinese population.
This study explored Chinese parents' experiences of their participation in taking care of their hospitalised child.
A qualitative exploratory design was adopted to capture parents' experiences of participation.
The study was conducted in four paediatric wards of a regional acute general hospital in the New Territories, a major geographical region of Hong Kong.
Nineteen parents (16 mothers and three fathers) who had a child hospitalised for more than 48 h and identified themselves as staying comparatively longer with the child than their counterpart were recruited.
Data were collection by tape-recorded semi-structured interview.
Four major categories that illustrated parents' experiences of participation in childcare were identified: reasons for staying with the child, rescheduling of family's routine, expectations of nurses, and comments on facility provisions. The findings highlight parents' desire for participation in caring for their hospitalised child, their unexpressed needs for communication and concern about the non-monetary costs of participation.
Most parents viewed accompanying their hospitalised child as an unconditional aspect of being a parent and had a strong desire for participation. Parents' need for communication and emotional support during their participation of childcare in paediatric unit are universal. As Chinese parents are passive in seeking help, nurses should take the initiative in assessing their needs and offering them support accordingly.
无限制探视时间的引入促使家长陪伴并参与照顾住院的孩子。为了陪伴住院的孩子，家长不得不离开家和工作岗位，这进而对他们的个人生活和家庭生活产生影响。然而，尚未发现有针对中国人群的关于家长在儿科住院期间参与儿童护理经历的已发表研究。
本研究探讨了中国家长参与照顾住院孩子的经历。
采用质性探索性设计来获取家长的参与经历。
本研究在香港主要地理区域新界的一家地区急症综合医院的四个儿科病房进行。
招募了19位家长（16位母亲和3位父亲），他们的孩子住院时间超过48小时，且他们认为自己陪伴孩子的时间比其他家长更长。
通过录音半结构化访谈收集数据。
确定了四个说明家长参与儿童护理经历的主要类别：陪伴孩子的原因、家庭日常安排的重新调整、对护士的期望以及对设施配备的评价。研究结果凸显了家长参与照顾住院孩子的愿望、他们未表达的沟通需求以及对参与的非货币成本的担忧。
大多数家长将陪伴住院孩子视为为人父母的一个无条件的方面，并且有强烈的参与愿望。家长在儿科病房参与儿童护理期间对沟通和情感支持的需求是普遍存在的。由于中国家长在寻求帮助方面较为被动，护士应主动评估他们的需求并相应地提供支持。
