Partnering with families of children with medical complexity to evaluate interventions.
作者信息
Fayed Nora, Gardecki Meghan, Cohen Eyal
机构信息
School of Rehabilitation Therapy (Fayed, Gardecki), Queen's University, Kingston, Ont.; Division of Paediatric Medicine and Child Health Evaluative Sciences (Cohen), The Hospital for Sick Children; Department of Pediatrics, and Institute of Health Policy, Management and Evaluation (Cohen), University of Toronto, Toronto, Ont.
出版信息
CMAJ. 2018 Nov 7;190(Suppl):S24-S25. doi: 10.1503/cmaj.180372.
Abstract
摘要
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本文引用的文献
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Patient-important activity and participation outcomes in clinical trials involving children with chronic conditions.涉及慢性病儿童的临床试验中的患者重要活动和参与结果。
Qual Life Res. 2014 Apr;23(3):751-7. doi: 10.1007/s11136-013-0483-9. Epub 2013 Sep 13.
2
Patterns and costs of health care use of children with medical complexity.儿童医疗复杂性患者的医疗保健使用模式和费用。
Pediatrics. 2012 Dec;130(6):e1463-70. doi: 10.1542/peds.2012-0175. Epub 2012 Nov 26.
3
Children with medical complexity: an emerging population for clinical and research initiatives.患有复杂疾病的儿童：临床和研究倡议的新兴人群。
Pediatrics. 2011 Mar;127(3):529-38. doi: 10.1542/peds.2010-0910. Epub 2011 Feb 21.
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Health among caregivers of children with health problems: findings from a Canadian population-based study.患有健康问题儿童的照料者的健康状况：一项基于加拿大人群的研究结果
Am J Public Health. 2009 Jul;99(7):1254-62. doi: 10.2105/AJPH.2007.129817. Epub 2008 Dec 4.
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The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.患者报告结局测量信息系统（PROMIS）：美国国立卫生研究院路线图合作组头两年的进展情况
Med Care. 2007 May;45(5 Suppl 1):S3-S11. doi: 10.1097/01.mlr.0000258615.42478.55.
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