Ruggiano Nicole, Brown Ellen L, Shaw Shanae, Geldmacher David, Clarke Peter, Hristidis Vagelis, Bertram Jessica
a School of Social Work , University of Alabama , Tuscaloosa , Alabama.
b Nicole Wertheim College of Nursing and Health Sciences , Florida International University , Miami , Florida , USA.
J Gerontol Soc Work. 2019 May-Jun;62(4):432-450. doi: 10.1080/01634372.2018.1546786. Epub 2018 Nov 13.
Technologies designed to support caregivers of adults with Alzheimer's disease and related dementias (AD/RD) have been developing at an increasingly rapid pace. However, little remains known about caregivers' perspectives on how technologies can and should help them navigate larger service systems they interact with to engage in caregiving. This study involved in-depth interviews and a beta test of an AD/RD caregiver app to learn more about how they currently use technologies and how potential technological features and functions can best meet their needs. Thematic findings suggest a conceptual model for designing AD/RD caregiver technologies. The findings suggest that eHealth and individual technologies may not fully meet the needs of caregivers as they navigate the larger systems within which they provide care. Findings highlight the need to develop technologies for caregivers that are effective, easy to use, and more widely disseminated - especially for caregivers from disadvantaged backgrounds.
旨在支持患有阿尔茨海默病及相关痴呆症(AD/RD)的成年人护理者的技术发展速度日益加快。然而,对于护理者如何看待技术能够以及应该如何帮助他们在与之互动以提供护理的更大服务系统中应对,我们所知甚少。本研究进行了深入访谈,并对一款AD/RD护理者应用程序进行了测试,以进一步了解他们目前如何使用技术,以及潜在的技术特性和功能如何能够最好地满足他们的需求。主题研究结果提出了一个设计AD/RD护理者技术的概念模型。研究结果表明,电子健康和个体技术在护理者应对其提供护理的更大系统时,可能无法完全满足他们的需求。研究结果强调,需要为护理者开发有效、易用且能更广泛传播的技术——尤其是为来自弱势背景的护理者。