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[乳腺癌女性配偶的心理困扰与照料负担]

[Psychological distress and caregiving burden among spouses of women with breast cancer].

作者信息

Fekih-Romdhane F, Henchiri H, Ridha R, Labbane R, Cheour M

机构信息

Faculté de médecine de Tunis, université de Tunis El Manar, 15, rue Djebel Kakhdar, La Rabta, 1007 Tunis, Tunisie; Hôpital Razi, cité des Orangers, 2010 La Mannouba, Tunisie.

Faculté de médecine de Tunis, université de Tunis El Manar, 15, rue Djebel Kakhdar, La Rabta, 1007 Tunis, Tunisie; Institut Salah Azaiez, boulevard du 9 avril 1938, 1006 Tunis, Tunisie.

出版信息

Encephale. 2019 Apr;45(2):190-192. doi: 10.1016/j.encep.2018.09.003. Epub 2018 Nov 11.

Abstract

Breast cancer is a chronic disease that affects both patients and their caregivers. Spouses, in particular, will generally assume the role of primary caregiver and experience significant physical, social, economic and emotional stress. In the face of cancer, being the spouse of a patient is synonymous with unmet psychosocial needs and a new role assignment, that of a primary caregiver. In addition, cancer confronts spouses with fear of partner loss. This leads to a set of adverse consequences such as depression, anxiety, uncertainty, stress, etc. Several studies have shown that breast cancer reduces the quality of life of patients' spouses and increases their emotional distress, their psychosocial needs, and their responsibilities within the family. Spouses may live a complex powerful emotional experience, which is equal to or greater than that experienced by patients during the diagnosis and treatment process. These multiple solicitations contribute to the heavy symptom burden. Therefore, in the context of breast cancer, identifying vulnerable spouses and providing them with appropriate support would help ensure better adherence to the care of their wives at different stages of the disease.

摘要

乳腺癌是一种影响患者及其照料者的慢性疾病。特别是配偶,通常会承担主要照料者的角色,并经历巨大的身体、社会、经济和情感压力。面对癌症,作为患者的配偶意味着心理社会需求未得到满足以及新的角色分配,即主要照料者的角色。此外,癌症使配偶面临失去伴侣的恐惧。这会导致一系列不良后果,如抑郁、焦虑、不确定性、压力等。多项研究表明,乳腺癌会降低患者配偶的生活质量,增加他们的情绪困扰、心理社会需求以及在家庭中的责任。配偶可能会经历复杂而强烈的情感体验,这种体验等同于或大于患者在诊断和治疗过程中所经历的。这些多重诉求导致了沉重的症状负担。因此,在乳腺癌的背景下,识别脆弱的配偶并为他们提供适当的支持将有助于确保在疾病的不同阶段更好地坚持对其妻子的照料。

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