Faculty of Health and Social Sciences, Department of Nursing and Health Sciences, University of Southeast Norway, Kongsberg, Norway.
University of Southeast Norway, Drammen, Norway.
Int J Older People Nurs. 2019 Mar;14(1):e12214. doi: 10.1111/opn.12214. Epub 2018 Nov 16.
To explore the lived experiences and support needs of the care partners of older people with mental health problems living at home with assistance from home care services. Care partners face significant challenges in their care role and they often feel unsupported. An understanding of their experiences may help improve home care to support their needs.
An exploratory qualitative approach was used. The study is based on the SRQR and COREQ reporting guidelines. In-depth interviews were conducted with six Norwegian care partners from two municipalities. Data were collected during 2012-2013 and 2016. The data were analysed using Gadamer's hermeneutics.
Three themes were identified: "invisible cornerstones," "dimensions of collaboration" and "unwanted roles."
Few or no routines for collaboration exist between care partners and home care, and the care partners seem to have little knowledge of legal rights. They request more information, spare time and the opportunity to remain in their original family role. However, their main focus is for the patient to receive the necessary help from home care. Home care have restricted resources for meeting these needs and share a sense of powerlessness and lack of influence over their own everyday life with the care partners. There is a need for a systematic, person-centred approach to collaboration. A correlation is necessary between what is communicated at the system level and the means of realising this in practice for home care to meet care partners' needs.
探索在居家接受家庭护理服务的精神健康问题老年人的护理伙伴的生活体验和支持需求。护理伙伴在他们的护理角色中面临重大挑战，他们常常感到没有得到支持。了解他们的经历可能有助于改善家庭护理以满足他们的需求。
采用探索性定性方法。该研究基于 SRQR 和 COREQ 报告指南。对来自两个市的六名挪威护理伙伴进行了深入访谈。数据收集于 2012-2013 年和 2016 年进行。使用伽达默尔的解释学对数据进行分析。
确定了三个主题：“看不见的基石”、“协作的维度”和“不想要的角色”。
护理伙伴与家庭护理之间几乎没有或没有协作惯例，而且护理伙伴似乎对法律权利知之甚少。他们要求获得更多信息、业余时间和保持原有家庭角色的机会。然而，他们的主要关注点是患者从家庭护理中获得必要的帮助。家庭护理资源有限，难以满足这些需求，并且与护理伙伴一样，对自己的日常生活感到无能为力和缺乏影响力。需要采用系统的、以个人为中心的协作方法。在系统层面上进行沟通与在实践中实现这一目标之间需要有相关性，以便家庭护理满足护理伙伴的需求。
