J Pediatr Health Care. 2019 May-Jun;33(3):255-262. doi: 10.1016/j.pedhc.2018.08.010. Epub 2018 Nov 16.
Children with disabilities have significant health care needs, and receipt of care coordinator services may reduce caregiver burdens. The present study assessed caregivers' experience and satisfaction with care coordination.
Caregivers of Medicaid-enrolled children with disabilities (n = 2,061) completed a survey (online or by telephone) collecting information on the caregivers' experiences and satisfaction with care coordination using the Family Experiences with Coordination of Care questionnaire.
Eighty percent of caregivers with a care coordinator reported receiving help making specialist appointments, and 71% reported help obtaining community services. Caregivers who reported that the care coordinator helped with specialist appointments or was knowledgeable, supportive, and advocating for children had increased odds of satisfaction (odds ratio = 3.46, 95% confidence interval = [1.01, 11.77] and odds ratio = 1.07, 95% confidence interval = [1.03, 1.11], respectively).
Findings show opportunities for improving care coordination in Medicaid-enrolled children with disabilities and that some specific elements of care coordination may enhance caregiver satisfaction with care.
残疾儿童有显著的医疗保健需求，而获得护理协调员服务可能会减轻照顾者的负担。本研究评估了照顾者对护理协调的体验和满意度。
使用协调护理家庭体验问卷，对参加医疗补助计划的残疾儿童的照顾者（n=2061）进行了一项调查（在线或通过电话），收集有关照顾者体验和对护理协调满意度的信息。
80%有护理协调员的照顾者报告说在预约专科医生方面得到了帮助，71%的照顾者报告说在获得社区服务方面得到了帮助。报告护理协调员帮助预约专科医生或具有知识、支持和为孩子辩护的照顾者，其满意度的可能性更高（优势比=3.46，95%置信区间=[1.01, 11.77]和优势比=1.07，95%置信区间=[1.03, 1.11]）。
研究结果表明，在参加医疗补助计划的残疾儿童中，有机会改善护理协调，而护理协调的某些特定要素可能会提高照顾者对护理的满意度。
