Hofmann Molly, Perez Patricia C, Barack Ruann
Division of Specialized Care for Children, University of Illinois at Chicago, 3135 Old Jacksonville Rd, Springfield, IL, 62704, USA.
Division of Specialized Care for Children, University of Illinois at Chicago, 4700 N Sterling Ave, Peoria, IL, 61615, USA.
Matern Child Health J. 2025 Sep 5. doi: 10.1007/s10995-025-04153-z.
Care coordination can be an essential source of support to families of children with special health care needs and should ideally lead to improvements in the organization of care.
This publication aims to share the experience of one statewide Title V organization's work to develop and validate a care coordination satisfaction survey.
UIC-DSCC engaged with the Family Advisory Council and a Family Survey Committee to revise existing surveys measuring different care coordination domains. The overall consensus was to apply a 13-item annual care coordination satisfaction survey. The survey was administered to families between January and April 2023. Psychometric reviews included exploratory Factor Analysis for the underlying structure of the items and Cronbach α for reliability. A top-box approach was used to represent item proportion.
899 families completed the 13-item measure. The Exploratory Factor Analysis determined a 2-factor solution: (1) Care Coordination Satisfaction and (2) Engagement and Impact on Quality of Life-none of the items required removal. Factor 1's top-box results show families' positive experience with care coordination, with 6.37 of the seven questions being answered with the most favorable answer. Similarly, in factor 2, 5.28 of the six questions were responded to with the top or most favorable answer.
Family partnership is a crucial part of the care coordination process, and UIC-DSCC has learned that this partnership is also critical when evaluating family satisfaction with care coordination services. The 13-item care coordination survey demonstrated adequacy and can assist with quality improvement in care coordination programs.
护理协调对于有特殊医疗需求儿童的家庭而言可能是重要的支持来源，理想情况下应能改善护理的组织情况。
本出版物旨在分享一个全州范围的第五章组织在开发和验证护理协调满意度调查方面的工作经验。
伊利诺伊大学芝加哥分校发育与筛查中心（UIC-DSCC）与家庭咨询委员会和家庭调查委员会合作，修订现有的衡量不同护理协调领域的调查。总体共识是采用一项包含13个条目的年度护理协调满意度调查。该调查于2023年1月至4月期间对家庭进行。心理测量学审查包括对项目潜在结构的探索性因子分析以及对可靠性的克朗巴哈α系数分析。采用顶格法来表示项目比例。
899个家庭完成了这项包含13个条目的测量。探索性因子分析确定了一个双因子解决方案：（1）护理协调满意度和（2）参与度及对生活质量的影响——无需删除任何项目。因子1的顶格结果显示家庭在护理协调方面有积极体验，七个问题中有6.37个得到了最有利的回答。同样，在因子2中，六个问题中有5.28个得到了最高或最有利的回答。
家庭伙伴关系是护理协调过程的关键部分，伊利诺伊大学芝加哥分校发育与筛查中心了解到，在评估家庭对护理协调服务的满意度时，这种伙伴关系也至关重要。这项包含13个条目的护理协调调查显示出其充分性，可协助改善护理协调项目的质量。
