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健康数据经济初兴之际对数据共享的再思考:一种观点

Rethinking Data Sharing at the Dawn of a Health Data Economy: A Viewpoint.

作者信息

Tang Chunlei, Plasek Joseph M, Bates David W

机构信息

Division of General Internal Medicine and Primary Care, Brigham and Women's Hospital, Boston, MA, United States.

Harvard Medical School, Harvard University, Boston, MA, United States.

出版信息

J Med Internet Res. 2018 Nov 22;20(11):e11519. doi: 10.2196/11519.

Abstract

A health data economy has begun to form, but its rise has been tempered by the profound lack of sharing of both data and data products such as models, intermediate results, and annotated training corpora, and this severely limits the potential for triggering economic cluster effects. Economic cluster effects represent a means to elicit benefit from economies of scale from internal data innovations and are beneficial because they may mitigate challenges from external sources. Within institutions, data product sharing is needed to spark data entrepreneurship and data innovation, and cross-institutional sharing is also critical, especially for rare conditions.

摘要

健康数据经济已开始形成,但其发展因数据以及模型、中间结果和带注释训练语料库等数据产品的严重缺乏共享而受到抑制,这严重限制了引发经济集群效应的潜力。经济集群效应是从内部数据创新的规模经济中获取收益的一种手段,并且是有益的,因为它们可能减轻来自外部的挑战。在机构内部,需要共享数据产品以激发数据创业和数据创新,跨机构共享也至关重要,尤其是对于罕见病况而言。

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