Nabors Laura, Liddle Melissa, Graves Myia L, Kamphaus Allison, Elkins JaLisa
Health Promotion and Education Program, School of Human Services, University of Cincinnati, Cincinnati, Ohio.
Department of Psychology, Xavier University, Cincinnati, Ohio.
Child Care Health Dev. 2019 Mar;45(2):227-233. doi: 10.1111/cch.12635. Epub 2018 Dec 19.
Children living with chronic illnesses may rely on family for social support during hospitalization. Understanding child and parent perspectives about the nature of the sibling and family relationships during hospitalization will provide information about these relationships during a stressful period.
English-speaking children diagnosed with chronic illnesses, siblings, and parents participated. They were residing at a Ronald McDonald House. A qualitative study using interviews with children and parents was completed.
Seventeen mothers, eight children with illnesses, and twelve siblings completed interviews. Children with illnesses benefitted from connections with parents. Mothers believed that siblings and the ill child benefitted from being in close contact. Siblings were worried about their brother or sister with an illness, and despite this, the family was coping well. Siblings helped with the medical regimen for a brother or sister with a chronic illness. Trying to help the family function in a routine or "normal" fashion was important to children with illnesses and siblings.
Family connection was critical for children with chronic illnesses during hospitalization. Findings highlighted the importance of sibling support as a factor promoting child and family resilience when a child is facing medical procedures.
患有慢性疾病的儿童在住院期间可能依赖家庭获得社会支持。了解儿童及其父母对住院期间兄弟姐妹关系和家庭关系本质的看法，将为这一压力时期的这些关系提供信息。
讲英语的患有慢性疾病的儿童、其兄弟姐妹及父母参与其中。他们居住在罗纳德·麦当劳之家。完成了一项对儿童和父母进行访谈的定性研究。
17位母亲、8名患病儿童和12名兄弟姐妹完成了访谈。患病儿童从与父母的联系中受益。母亲们认为兄弟姐妹和患病儿童从密切接触中受益。兄弟姐妹担心生病的兄弟姐妹，尽管如此，家庭应对良好。兄弟姐妹帮助患有慢性疾病的兄弟姐妹进行医疗护理。努力帮助家庭以常规或“正常”方式运转对患病儿童和其兄弟姐妹很重要。
住院期间，家庭联系对患有慢性疾病的儿童至关重要。研究结果突出了兄弟姐妹支持作为儿童面临医疗程序时促进儿童和家庭恢复力的一个因素的重要性。
