Ibrahim Kinda, Randolph Gina, Doran Olivia, Donyai Parastou
NIHR CLAHRC Wessex, University Hospital Southampton NHS Foundation Trust, Faculty of Medicine, University of Southampton, Southampton SOA6 6YD, UK.
Reading School of Pharmacy, University of Reading, P.O. Box 226, Whiteknights, Reading RG6 6AP, UK.
Pharmacy (Basel). 2018 Nov 24;6(4):122. doi: 10.3390/pharmacy6040122.
Guidelines recommend encouraging young people with attention deficit hyperactivity disorder (ADHD) who are taking medication long-term, to discuss their preferences for stopping or changing their treatment, including a discussion about 'drug holidays', with their doctor. Yet, to date, no written information has been available to empower children and adolescents with ADHD and their parents to make informed decisions about drug holidays. The aim of this study was to design and develop a suite of decision aids to help families decide if they want to take a drug holiday from methylphenidate. The material was designed with reference to the literature and in consultation with a secondary-care specialist, and validated with two panels composed of specialists and parents using content validity questionnaires and interviews; before being finished and branded by a design service. Three decision aids were produced, with parental and adolescent versions composed of a booklet and a pull-out form for self-completion, and the child version being a booklet for reading and self-completion. Existing research calls for suitable written materials to feasibly increase the uptake of practitioner-initiated planned drug holidays from methylphenidate. We envisage these materials will open up the space to discuss drug holidays in ADHD during annual reviews, in line with UK government guidelines.
指南建议，鼓励长期服用药物治疗注意力缺陷多动障碍（ADHD）的年轻人与医生讨论他们对停药或换药的偏好，包括关于“药物假期”的讨论。然而，迄今为止，尚无书面信息能让患有ADHD的儿童和青少年及其父母就药物假期做出明智的决定。本研究的目的是设计并开发一套决策辅助工具，以帮助家庭决定是否要从哌甲酯开始一个药物假期。该材料是参照文献并与二级护理专家协商设计的，并通过内容效度问卷和访谈，由由专家和家长组成的两个小组进行了验证；然后由设计服务机构完成并制作品牌。制作了三种决策辅助工具，家长版和青少年版由一本小册子和一份供自行填写的活页表格组成，儿童版是一本供阅读和自行填写的小册子。现有研究呼吁提供合适的书面材料，以切实增加从哌甲酯开始由医生发起的计划性药物假期的采用率。我们设想，这些材料将根据英国政府指南，在年度复查期间为讨论ADHD中的药物假期开辟空间。
