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“共享项目”:提升有犯罪前科的个人、政策制定者和研究人员的能力,以共同推动医疗服务的变革。

The Share Project: Building Capacity of Justice-Involved Individuals, Policymakers, and Researchers to Collectively Transform Health Care Delivery.

机构信息

Johanna Elumn Madera, Jenerius A. Aminawung, Kei-Hoi Cheung, Luis Marenco, Karen Wang, and Emily A. Wang are with the Yale University School of Medicine, New Haven, CT. Amy Carroll-Scott is with the Drexel University Dornsife School of Public Health, Philadelphia, PA. Joseph Calderon is with the San Francisco Department of Public Health, San Francisco, CA.

出版信息

Am J Public Health. 2019 Jan;109(1):113-115. doi: 10.2105/AJPH.2018.304750. Epub 2018 Nov 29.

DOI:10.2105/AJPH.2018.304750
PMID:30496002
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6301398/
Abstract

The Share Project (TSP), a US health justice initiative, convened key stakeholders to advance the use of inclusive research methods and data sharing to engage groups that are typically marginalized from research. TSP trained justice-involved patients, community health workers, policymakers, and researchers in participatory research and the use of a data-sharing platform developed with justice-involved patients. The platform allowed users to analyze health and criminal justice data to develop new research that is patient driven and responsive to the needs of providers.

摘要

共享计划(TSP)是美国的一个健康公正倡议,召集了主要利益相关者,以推进包容性研究方法和数据共享的使用,让那些通常被研究边缘化的群体参与进来。TSP 培训了参与司法的患者、社区卫生工作者、政策制定者和研究人员,让他们掌握参与式研究和使用一个由参与司法的患者开发的数据共享平台。该平台允许用户分析健康和刑事司法数据,以开发新的研究,这些研究是由患者驱动的,并响应提供者的需求。

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本文引用的文献

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AMIA Annu Symp Proc. 2018 Apr 16;2017:1715-1723. eCollection 2017.
2
Balancing the Rights to Protection and Participation: A Call for Expanded Access to Ethically Conducted Correctional Health Research.平衡保护和参与的权利:呼吁扩大获得符合伦理的惩教卫生研究的机会。
J Gen Intern Med. 2018 May;33(5):764-768. doi: 10.1007/s11606-018-4318-9. Epub 2018 Feb 5.
3
Mass incarceration, public health, and widening inequality in the USA.大规模监禁、公共卫生和美国不断扩大的不平等。
Lancet. 2017 Apr 8;389(10077):1464-1474. doi: 10.1016/S0140-6736(17)30259-3.
4
Integrating community-based participatory research and informatics approaches to improve the engagement and health of underserved populations.整合基于社区的参与性研究和信息学方法,以提高弱势群体的参与度和健康水平。
J Am Med Inform Assoc. 2016 Jan;23(1):60-73. doi: 10.1093/jamia/ocv094. Epub 2015 Jul 30.
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Results from the Data & Democracy initiative to enhance community-based organization data and research capacity.数据与民主倡议的成果,旨在增强社区组织的数据和研究能力。
Am J Public Health. 2012 Jul;102(7):1384-91. doi: 10.2105/AJPH.2011.300457. Epub 2012 May 17.