Johanna Elumn Madera, Jenerius A. Aminawung, Kei-Hoi Cheung, Luis Marenco, Karen Wang, and Emily A. Wang are with the Yale University School of Medicine, New Haven, CT. Amy Carroll-Scott is with the Drexel University Dornsife School of Public Health, Philadelphia, PA. Joseph Calderon is with the San Francisco Department of Public Health, San Francisco, CA.
Am J Public Health. 2019 Jan;109(1):113-115. doi: 10.2105/AJPH.2018.304750. Epub 2018 Nov 29.
The Share Project (TSP), a US health justice initiative, convened key stakeholders to advance the use of inclusive research methods and data sharing to engage groups that are typically marginalized from research. TSP trained justice-involved patients, community health workers, policymakers, and researchers in participatory research and the use of a data-sharing platform developed with justice-involved patients. The platform allowed users to analyze health and criminal justice data to develop new research that is patient driven and responsive to the needs of providers.
共享计划(TSP)是美国的一个健康公正倡议,召集了主要利益相关者,以推进包容性研究方法和数据共享的使用,让那些通常被研究边缘化的群体参与进来。TSP 培训了参与司法的患者、社区卫生工作者、政策制定者和研究人员,让他们掌握参与式研究和使用一个由参与司法的患者开发的数据共享平台。该平台允许用户分析健康和刑事司法数据,以开发新的研究,这些研究是由患者驱动的,并响应提供者的需求。