Krawiec Conrad, Levi Benjamin
A pediatrician, internist, pediatric critical care physician, and member of the Division of Pediatric Critical Care Medicine at Penn State Health Children's Hospital in Hershey, Pennsylvania.
A philosopher and pediatrician in the Division of General Academic Pediatrics at Penn State Hershey Medical Center and the Department of Humanities at Penn State College of Medicine in Hershey, Pennsylvania.
AMA J Ethics. 2018 Nov 1;20(11):E1017-1024. doi: 10.1001/amajethics.2018.1017.
Parents of children with complex health needs are often both vigilant and very knowledgeable about their child's disease state. That said, sometimes parents' hyperfocus, combined with their strong emotional attachment, can result in both false beliefs regarding their child's capacities and disagreements with clinicians about what is and is not clinically indicated. We examine ethical and professional responsibilities clinicians should consider when working with parents who hold false beliefs about their child with complex health needs.
有复杂健康需求的儿童的父母通常对孩子的病情既警惕又非常了解。话虽如此，有时父母的过度关注，再加上他们强烈的情感依恋，可能会导致对孩子能力的错误信念，以及与临床医生在哪些是临床指征、哪些不是临床指征方面产生分歧。我们探讨了临床医生在与对有复杂健康需求的孩子持有错误信念的父母合作时应考虑的伦理和职业责任。
