Rastgardani Tara, Armstrong Melissa J, Gagliardi Anna R, Marras Connie
Morton and Gloria Shulman Movement Disorders Centre and the Edmond J Safra Program in Parkinson's Research Toronto Western Hospital Toronto ON Canada.
Department of Neurology University of Florida College of Medicine Gainesville Florida USA.
Mov Disord Clin Pract. 2018 Oct 9;5(5):461-470. doi: 10.1002/mdc3.12672. eCollection 2018 Sep-Oct.
periods are a common and disabling symptom of Parkinson's disease. We reviewed published research on understanding, impact, and communication regarding periods to identify issues warranting further research.
We performed a scoping review, searching MEDLINE, EMBASE, Cochrane Library, CINAHL, and PsycINFO from 2006 to January 2018 for studies examining the impact of, understanding of, or communication about periods.
Twenty-six papers met eligibility criteria. Twenty-three studies evaluated the impact or experience of periods in patients, three evaluated the impact upon carepartners, two papers addressed understanding of periods, one study evaluated communication about periods, and three studies evaluated a facilitator of communication about periods. The findings indicate that (1) periods are among the most troublesome symptoms to patients and that their impact on activities is broad; (2) the understanding of periods by patients, carepartners, and nurses may be suboptimal; and (3) questionnaires hold promise as a mechanism for facilitating communication given the findings that they may enhance the detection of periods and are rated as useful by physicians. No studies evaluated interventions to promote knowledge about periods, and no studies identified barriers of communication about periods.
There is a paucity of knowledge regarding the lived experiences of periods, particularly for carepartners. Additionally, little knowledge exists in the literature regarding understanding of and communication about periods between patients or carepartners and treating physicians. Further research is required to explore these issues to ultimately improve the treatment of periods.
月经是帕金森病常见且致残的症状。我们回顾了已发表的关于月经的理解、影响及沟通方面的研究，以确定值得进一步研究的问题。
我们进行了一项范围综述，检索了2006年至2018年1月期间的MEDLINE、EMBASE、Cochrane图书馆、CINAHL和PsycINFO数据库，以查找研究月经影响、对月经的理解或关于月经沟通的研究。
26篇论文符合纳入标准。23项研究评估了月经对患者的影响或经历，3项评估了对护理伙伴的影响，2篇论文探讨了对月经的理解，1项研究评估了关于月经的沟通，3项研究评估了关于月经沟通的促进因素。研究结果表明：（1）月经是患者最困扰的症状之一，其对活动的影响广泛；（2）患者、护理伙伴和护士对月经的理解可能不太理想；（3）鉴于问卷调查可能会提高月经的检出率且被医生评为有用，问卷调查有望成为促进沟通的一种机制。没有研究评估促进月经知识的干预措施，也没有研究确定月经沟通的障碍。
关于月经的生活经历，尤其是护理伙伴的相关知识匮乏。此外，文献中关于患者或护理伙伴与治疗医生之间对月经的理解和沟通的知识也很少。需要进一步研究来探讨这些问题，以最终改善月经的治疗。
